Hi Melissa......yep i did find out that chemo can cause scar tissue......what i didn't find is how to treat it??? Does the doctor have any ideas? Surely they've dealt with this before...either the surgeon or oncologist has a recommendation? I don't know..i'd call around to orthopedic specialists...even chiropractors. I know of so many on this site that have had leg pain after surgery or chemo and its not always explained. I did not have chemo but there was certainly a chance of scar tissue or nerve damage from the surgery...i guess i got lucky in finding the right person who found the source which in my case was a pinched nerve.
Hoping you can get this resolved........Pat
I completely understand the confusion, sometimes it all meshes together. My father had a PET a few weeks ago and it showed that areas had markedly improved and the oncologist thinks the scar tissue is from where the chemo killed cancer cells. Does that make sense?
Also, luckily my father does not have to send anything through his insurance because this is a workers comp. case so all is covered. In that respect, we are very fortunate.
Sorry Melissa......sometimes everything runs together and i can't even use chemo brain as an excuse. I think i got thrown by the scar tissue....what is that from...another surgery? I'm kind of surprized they're not doing another PET scan instead of an MRI..as its a lot more conclusive on spread or if the chemo is working...but we all know the insurance companies balk at PET scans. I'm sure the MRI is to check the kidneys. I would be terribly distrought over the overlook of not looking at blood reports before giving chemo. Honestly as the caregivers here will tell you ..you have to be on top of them every step of the way..know all the rules and procedures...know all the meds and dosages...its a full time job. I know .. i had to do it with my own father. I still have the battle scars. Lord help me if i ever have to be treated myself by one of those people......i'll hope they have short term memory loss!!
Hoping your dad bounces back from their mistake and gets back on track.
Thank you for all of the info...actually my father never had a cystecomy though because they caught his cancer too late and so far he still isn't a candidate. He is in the hospital and having an MRI tonight...what exactly will that show?
11 years 7 months ago - 11 years 7 months ago#21936by Patricia
There's a bundle of nerves in that area that get messed with and yes scar tissue or a pinched nerve can cause considerable pain.....if you're uncomfortable with a chiropractor try taking your dad to an orthopedic doctor.
i'm sure they have ruled out a DVT right...that would be noticable if there is swelling and heat generated from the leg......and there is a little reported syndrome i even hesitate to mention but it never hurts i guess to ask questions as his advocate...compartmentalized syndrome. These are the extremes. Honestly if you google leg pain and cystectomy you'll find its not so rare even if the doctor looks puzzled.