afraid to leave the house

George,
Venting helps!! And yes he would be upset if he knew you cut the grass and went for a motorcycle ride. I did nothing but walk the first 4 weeks, its all I could manage and I was afraid I would screw something up if I did more. There is alot going on down there, nerves and muscles trying to regenerate themselves. Its a test of our patience to recover, but it has to have the time it needs. I always wondered why they said recovery took so long, after my r/c I knew why, some of us aren't so inclined to wait it out, at 67 I wanted to make sure I did what I was told by the surgeon. In any case I feel your pain George, try to take it easy, you want to be healed as much as possible for chemo, too much too fast , an r/c, a neo, and now chemo, Ginger and I talk of you often recently, we hope things turn around for you soon!!!
Gene Beane

I'm 3 weeks out from my RC. Maybe I'm expecting to much to fast. I finally got my catheter out on wednesday... What a relief, but, Now I have no control. If I'm sitting and go to stand up I cannot figure out how to tighten up so I don't lose control. I have no problem at all sitting, standing or sleeping. Only when I try and move to a different position. I spoke to the Doc and all he said was "it will get better". He said a lot of nerve damage down in that area. He has never once said anything about kegels.
Went to the oncologist and he wanted to start chemo right away. I went to the surgeon for my first visit and he recommended waiting 2 more weeks to heal and get stronger. He felt if I started chemo right away and can't handle it I will screw up the whole process if I have to miss treatments. I think i'm going to split the difference between the two Drs. and start in one week. I really hate to lose valuable time. Looking back, maybe if I would have had the RC right away and then did post chemo I might not be in the situation I'm in now. I lost 5 months from diagnosis till I had my RC due to doing chemo first. Maybe if I had the RC 5 months prior it might not have spread to my lymph nodes. Everything at the time said you have a better shot doing chemo first. Maybe the first uro was right and I didn't like what he was telling me, so I found different Docs who seemed less radical.
I have no clue on how I'm going to deal with no control and do chemo. I can only imagine all those fluids going in and coming straight out. How do people handle this situation?
A couple of positives for me... It's been 3 weeks from my surgury I was able to cut the grass and went for a motorcycle today. I'm sure the Doc would be upset if he knew. It may not have helped me physically to do this but it sure helped me mentally!!!!
Just venting,
George