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afraid to leave the house

11 years 1 month ago - 11 years 1 month ago #20696 by Leigh
Dear George,

I too had a fear of leaving the house initially when my tubes were removed and I feared leaking with sudden movements and coughing and sneazing.

My excercise routine was to do my walking around the house and up the stairs and I rarely went out except into the garden.

This changed very quickly though as daily I could see and feel that I was gaining the control of my new bladder.

It has been a couple of weeks now since you posted this and I hope those fears have gone.

You are in a situation now that you have started chemo and this may or may not hinder your progress in gaining control.

The chemo will be temporary and an important step in your journey to recovery and any problems during this time will disapear once chemo stops.

All the best...

Leigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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11 years 2 months ago #20329 by GEO
Thank you all for your support.... I really appreciate it.
George

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11 years 2 months ago #20325 by Cynthia
Patience is a word my husband would tell you I have no right to even use let alone have the guts to advise. But hindsight is such a lovely clear thing now isn’t it? You are in early days give your body time to heal cut yourself some slack here; you have to be healed and in good shape for chemo don’t lose sight of that. You have a new diversion and it will take time to settle in. As healing goes on and things knit back together it should get better. As for the chemo many, many people have done it after RC and you will make it through one day at a time just as you have done so far. Keep your eyes on the finish line it is just a matter of one step at a time.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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11 years 2 months ago #20317 by Gene Beane
George and Donut,

My motorcycle went bye bye years ago, I kept falling off!!!

Gene Beane

Hospital Cleveland Clinic r/c Sept.14,2007
Surgeon. Dr Stephen Campbell and Gill
Gene Beane..66 Ford Motor Company
Engineer, retired Vietnam Vet

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11 years 2 months ago #20315 by grampadonut
congrads on quick bike ride.. i understand , cant wait to get back on mine
what ever decision you made in the past were the "best" at that time...we cant go back and 2nd guess..please look forward and stay strong..grampadonut

grampadonut
dx t2-g3
05/07/08

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11 years 2 months ago #20312 by Patricia
George its really important that you give your new neobladder a chance to heal along with other trauma to your internal organs. Six weeks at least. Lifting or riding your bike could cause that neo to drop...you really need to concentrate on healing....walking...no lifting......and kegals.
Kegel exercises, exercises designed to strengthen your pelvic floor muscles, can help both prevent and treat incontinence. To perform Kegel exercises:

Pull in your pelvic floor muscles — the muscles you use to stop urinating.
Hold them for a count of three and then relax for a count of three.
Work up to 10 to 15 repetitions at a time.
Repeat three times daily.
Kegel exercises may be most successful when they’re taught by a therapist using biofeedback. Biofeedback uses information from a variety of pain-free monitoring devices to help teach you to control certain involuntary body responses, such as muscle tension. In this case, biofeedback can help ensure you’re contracting the proper muscles, and that the intensity and duration of the muscle contractions are optimal.

Other measures
Other self-care measures can help you reduce the strain on your pelvic organs. Follow these recommendations:

Avoid heavy lifting.
Avoid straining with bowel movements.
pat

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