wind out of my sails

15 years 8 months ago #19679 by Patricia
Replied by Patricia on topic wind out of my sails
George...so sorry. Do you currently have an oncologist? I think you need another opinion on the direction to go. Since you had the cisplatin, gemzar preoperatively i'm not so sure you can get that same combo again so soon.
Where are you located? Pat

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15 years 8 months ago - 15 years 8 months ago #19677 by Gene Beane
Replied by Gene Beane on topic wind out of my sails
George,

It is very curious that they didn't see this on the tests, isn't it. The path report is what everyone holds their breath for. I am feeling they should have seen something before surgery. Thats infuriating. Emotionally I would take a deep breath, think this through, maybe have another pathologist read the report,,see what he would have to say. Meanwhile your in our prayers here at the Beane House...Ginger

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15 years 8 months ago #19675 by mznoregrets
Replied by mznoregrets on topic wind out of my sails
George,

I am so sorry the path report was not better, the news of spread is devastating and heartbreaking. Right now your emotions are all over the place and most of those thoughts are not a comfort at all. I felt like the air got sucked right out of me when I was told I had bone mets - and I freaked for a long time. Finding some steady ground is hard to do after hearing those words, but you aren't alone. It took a while, but before long you will start to come to terms with it, too.

Do I think you are hopeless? Not for a heartbeat. Every horrific thing I had ever heard about cancer slammed me hard and fast when I first realized what the Drs were telling me. You are asking yourself the same questions, too. One good thing - you don't have to make all these decisions tonight, or by noon tomarrow. Take a few days to get thru the initial shock - and give yourself a break, cry and get ticked off. Just don't believe you are hopeless.

In the new section for mets discussions - I have been posting about some of the things I have been facing as I am living with mets and a new primary cancer, too. Please feel free to post anything you need to...there are lots of us here who are living with mets. The issues you are feeling battered by can be shared and responded to by folks who really can really relate. I wish I had a magic wand to change our realities, but I can't. I can offer you my support and my friendship as you journey here.

God Bless, Holly

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15 years 8 months ago - 15 years 8 months ago #19673 by momof4
Replied by momof4 on topic wind out of my sails
GEO,

I am so sorry that you received the news you did...there are very viable options for you...Please give yourself time to heal, and then start looking at your options...you need your strength, so get that back, and then you will figure out how you want to proceed...

If you need us we are here...

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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15 years 8 months ago - 15 years 8 months ago #19672 by Webs
Replied by Webs on topic wind out of my sails
George I don't know what to say. This is devastating news to receive. I do know that you are worth fighting for. Look for that needle. Remember that when you first get news it closes in on you give yourself time to come to grips with it before you make any decisions. Know that we are here for you. You are in my thoughts and prayers.

Webs

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15 years 8 months ago #19670 by GEO
wind out of my sails was created by GEO
So much for me being done and over with.... My rc went absolutely perfect. After having it done one week ago today I feel totaly normal. Till... the surgeon called me tonight at 9:00 to go over the path report. He did not get it all. It went outside the bladder into the surrounding muscle. The report shows he got all of that. I had previously done chemo before the RC. He said inside while doing the surgery everything inside was covered with this sticky glue like substance which made the operation a lot tougher. He said that wes probably from the previous chemo. All he could remove were 4 lymph nodes of which 3 came back positive. He pretty much said this does not look good. He said I can wait and do scans every 3 months to see where it shows up or I can do more chemo now and try and stop what ever is still their. I asked him what he would do and he said if there is somthing I want to do in the next three months to do it now. He also said not to wait and see if it shows up but to do more chemo asap. He said wait 3-4 weeks for everything to heal first. I can't believe nothing showed up a month ago on all the scans.
Am I in a hopeless situation now? Is it worth all the rough times ahead? Should I just ride it out and not do anything? Am I just BS ing myself by hunting for a needle in a haystack for a cure / remission ? I really thought I had this beat after how well the RC went.
What do I have to look forwart to,
George

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