Dad decided against the Avastin

15 years 9 months ago #17477 by Patricia
Replied by Patricia on topic Dad decided against the Avastin
Flo i did find a clinical trial in Cinti and its actually my oncologist Dr. Waterhouse....and the Avastin should be free...the protocol is listed on the site if you want to look into it further. Its in Phase 11 trials for bladder cancer.
Avastin is actually Bevacizumab so you'll know what you're looking at.
www.cancer.gov/search/ViewClinicalTrials.aspx?cdrid=452193&version=patient&protocolsearchid=4653382
Pat

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15 years 9 months ago #17470 by mssmr
Replied by mssmr on topic Dad decided against the Avastin
Thank you for sharing your father's decision and for supporting it. Karen is so
good at talking about family support and things like that. Enjoying being together
gets to be so important for everybody. Mine is a survivor-with-mets perspective.
Wishing you all peace, comfort and the best outcome -- in support Susan

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15 years 9 months ago #17443 by momof4
Replied by momof4 on topic Dad decided against the Avastin
Flo,

I am so glad that you are going home to spend some time with your parents...They both need it believe me!

As far as your fathers decision to stick with what he knows as far as the chemo is concerned...It is hard to say what we would do put in the same position as those we love...It is kind of like arm chair quarterbacking...There were a lot of decisions early on that my husband made that I didn't agree with...but it is their decision...and we would want that choice if the roles were reversed. As long as you know that he is well informed, then that is all you can do...

Your Father has Dr's and your mom looking after him...your mom needs someone to lean on...be there for her...I am speaking from personal experience here...my daughter just got home last month from college, and I don't know what I would do without her...

Have a great visit...

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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15 years 9 months ago #17437 by driscolls
Replied by driscolls on topic Dad decided against the Avastin
Floshoe,

I was my dad's biggest advocate and pushed him harder than anyone. The hardest day of my life was when he told me he was fighting this disease as hard as he could,but he asked me to honor his wishes when it was time to let go. His cancer had spread to his colon, and already having a bag for his urine, he said he would absolutely not have another bag if it came down to that. Unfortunately, or maybe fortunately, he never got to make that decision.

I know how hard this is for you and my best advice is to spend every minute you can with him. And it's wonderful that you are also spending time with your mom. My mom was so physically and emotionally drained, but she never left my dad for more than a couple of hours. They need our support as much as our dads!

Keeping you in my prayers!
Debi

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15 years 9 months ago #17424 by Gene Beane
Replied by Gene Beane on topic Dad decided against the Avastin
Thanks for the update, it sounds like dad knows what he wants and doesn't want. Spending a couple days with him will be so nice for all of you, and a break for mom. Have a special visit, Ginger

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15 years 9 months ago #17420 by floshoe
Dad decided against the Avastin was created by floshoe
Hi, everyone.

First, thank you for all of your kind thoughts and messages. I am not yet checking this board regularly, so I hope it is okay if I don't respond right away. I think I am still having some "denial" days when I try just not to think about everything, but these are becoming more few and far between.

Dad's oncology practice offered him Avastin, but he turned it down. He was just worried about the potential side effects and, probably more, fear of the unknown. He decided just to repeat the chemo he had last time, which was pretty mild and didn't make him sick.

I have always said I understand this is his disease and that I will support any choice he makes. I do support this choice, and I understand his thinking. However, I think I am still a little sad about his choice, I guess I selfishly just want one more thing to hope about, if that makes sense.

Mom said Dad is really tired. I feel pretty certain this is the cancer causing it.

I'm going home Wed. through Friday to see him and take mom out to lunch or something.

Thanks for listening! Flo

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