Dear Forum,
I am freaking out somewhat after reading the grading and stage section of this forum. My classification states that I am at stage IV which is a suprise to me.
Am I really so stupidly ill informed over my own diagnosis or have I been in denial or just not thinking straight because of chemo brain...
Please can anyone confirm whether the stage changes once RC and removal of positive nodes have been performed?
My last CT scan was clear and the follow up scan will be late August. I have never had a bone scan which concerns me as I have read so many of you guys had this as a standard before RC.
I will honestly say also that I have been reading the "In memoriam section" also and the story of Michael Anthony Hamilton written by his mum Janice Roberts. This drew my attention as he was the same age. His story is very similar to mine as he also had a RC and neo-bladder and also had positve nodes. Two years later he sadly died in his mum's arms.
I know we are all individuals and react differently to this disease and maybe I should lay off the stats and research for a while.....
I am fighting a war in my head today....
So is it true stage IV bladder cancer is not curable....so I am terminal already with no known mets....I do not understand. Please someone help me understand....
Thanks for letting me ramble...not sure if this makes any sense anyhow :
Leigh