Stage IV Bladder Cancer or not ?

15 years 10 months ago #17311 by marie
Replied by marie on topic Stage IV Bladder Cancer or not ?
Hi Leigh,
I can't add much but I did want to say I always think about you...try to keep positive. Take good care,
Marie (Anne)
RC Jan 18/08
external bag

Please Log in or Create an account to join the conversation.

15 years 10 months ago #17193 by Gene Beane
Replied by Gene Beane on topic Stage IV Bladder Cancer or not ?
Peter and Leigh,
That is funny, the falling story, thanks Peter for sharing, actually bladder cancer is like that,, we are just falling slower, have time to look in the windows.And in the end we don't fall so hard, and we can get up and move on!!!!
Ginger

Please Log in or Create an account to join the conversation.

15 years 10 months ago #17191 by Gene Beane
Replied by Gene Beane on topic Stage IV Bladder Cancer or not ?
Leigh,

Well I think its in your best interest to have a blow by blow discription of your whole scenario with the bladder cancer with your doctor, He really needs to let you know where your at in the staging process. I know I read about some in my husbands situation and they end up with metastisis 2 years later. Then I get a little scared. As did you, ask away and get the answers to set your mind at rest, and I hope its all good news, it may be as simple as a different stageing process in Amsterdam as opposed to the US...FIND OUT AND FEEL BETTER, WE ARE ALL WITH YOU LEIGH!!!! Ginger

Please Log in or Create an account to join the conversation.

15 years 10 months ago #17190 by Leigh
Replied by Leigh on topic Stage IV Bladder Cancer or not ?
Hello Peter,

I do feel much better today :)

Just talking about it helps also...I am so pleased I have my forum buddies here to help and support.

Thank you for your concern and hope tonight you have a great night sleep...

Kind Regards
Leigh

Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

Please Log in or Create an account to join the conversation.

15 years 10 months ago #17187 by PeterK
Replied by PeterK on topic Stage IV Bladder Cancer or not ?
Leigh,

Could you have been overstaged by a conservative pathologist? As Karen indicated, can't you sit down with your urologist and go back over the tests, CT scan, etc. which may give you some peace of mind? I kept waking up last night thinking of you and hope you feel much better today.

Regards,

Peter Konomos

Please Log in or Create an account to join the conversation.

15 years 10 months ago #17178 by Leigh
Replied by Leigh on topic Stage IV Bladder Cancer or not ?
Hello Peter,

Thank you for your message.

The stiff upper lip has returned Peter.....that gave me a good old laugh...thanks for that.

Leigh




Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne