Pain Management---13 days and Counting----VERY FRUSTRATED!!!!

15 years 10 months ago #16958 by Gene Beane
Karen,
Well its one year since you and I met on the forum, more like around July, but one year from their symptoms showing up, Angelo was in one place and you in another,now your all together, and working thru this situation that was probably the furthest thing from your mind one year ago. I pray you continue to have strength, as we all know as caregivers we just do what we need to do, whatever it takes, and you are certainly at the top of the list of caregivers. Ginger Beane

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15 years 10 months ago #16954 by momof4
floshoe,

That is the reason I post. In the hopes that someone else can learn from our experiences...I do suggest the Fentanyl Patch for pain...It doesn't effect the brain IE...he can keep his wits about him...this is drastically different from the Oxycontin...Also, radiation for pain is VERY effective, Especially when there is a larger area to treat. My husband has had no side effects at all from radiation...I do not know if this is true for most...he is fatigued...but I don't know if that is from the pain meds, radiation, or the cancer in general....possible a combination...

I wish you and your family many pain free good days to come...

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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15 years 10 months ago #16953 by floshoe
Hi, Karen.

I am new to this board. My dad has metastases to the same place your husband does, but we are just getting into all this.

I wanted to let you know your post was very helpful to me. I am going to talk to dad's oncologist about bringing in a pain specialist now, instead of waiting until a crisis. The only reason I knew even to suggest this was your (terrible!) experience.

I keep hearing from people that cancer specialists manage pain SO WELL these days, but the story I am hearing from actual patients and caregivers is that it is not quite that simple.

I hope you all are doing much better.

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15 years 10 months ago #16924 by marie
Dear Karen,
Always thinking of you and keeping you in my prayers.
Hugs,
Marie

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15 years 10 months ago #16830 by Leigh
Hello Karen,

Here's hoping Angelo stays pain free and comes home quickly. Great to hear he is able to be more active in his own care and eating sushi...

Amazing what pain relief can do eh!!

Thinking of you guys...
Leigh



Leigh, 39
Dx July 2007
TURBT July 2007
RC/Neobladder ,Studer Pouch, September 2007
Erasmus Centrum Rotterdam
TNM Classification: pT4 N2 Mo
4 cycles aduvant chemo Gemzar & Cisplatinum

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15 years 10 months ago #16825 by tate
Karen,

I am so glad to hear today was a good day and of course the prayers are still coming. How funny is that raymond?? my favorite 2 episodes are- the car in the livingrm and frog lady. I hope Angelo gets to come home soon. please take care of yourself!!
-tate

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