Where we are...Raw Emotions

15 years 11 months ago #15246 by Melodie
Replied by Melodie on topic Where we are...Raw Emotions
Karen,

I seldom read this section of the forum primarily because it brings me to tears and sometimes frightens me. But tonight I am glad that I visited this section and read your comments. You share your feelings in such a beautiful way...giving us an insight into the pain and passion of your life. And yet you are trying so hard to help others understand how important it is to communicate their feelings, esp. at such a difficult time.

I lost my mother to lung cancer 20 years back and that is one of my biggest regrets, that we didn't know how to talk with each other, even at the end. My brother-in-law also died from lung cancer about 18 months after my mother passed away...he had two sons, one 10 years and one only 10 months old. I so wished he had taken my advice and had tape recorded some conversations or done some video tapes...as the younger boy has no memories of his dad. You are so very wise to recognize and to push for the family to communicate, to share their feelings, so there will be fewer regrets and more precious memories to cherish later on.

Karen, I have you and yours on my daily prayer list. You are a woman of great strength and inspiration. Your family is so lucky to have you. May God bless and give you the peace of mind you so desperately need. Hugs! Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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15 years 11 months ago #15177 by momof4
Replied by momof4 on topic Where we are...Raw Emotions
Julie,

You are so right...I have been the "Lysol Lady" for months now...We also reccommend "Airborne"...The kids have gotten sick a nuber of times over the last months...my husband (Knock on wood) has not...I am not sure if it is the Lysol, or the airborne, or a combination...it may be all in our heads too...regardless we do it, and it makes us feel better and it seems to be working.

Karen

Caregiver for my Wonderful Husband Angelo, who has Metastatic Bladder Cancer.

Life isn't about how to survive the storm, but how to dance in the rain.

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15 years 11 months ago #15161 by Julie
Replied by Julie on topic Where we are...Raw Emotions
Karen, I wanted you to know I'm thinking of you and your husband. You are right in that it is so important to talk. To add to your encouragement of communicating I want to say that silence is also a message however it is a message that is easy to misinterpret. Don't guess what each other is thinking and feeling tell them.
There is no way out but through so take charge of your journey.

To reduce the risk of infection have anyone who comes to visit use Purell or an alcohol hand sanitizer as they come into the house. Also use paper towels to dry your hands and use Lysol or Clorox wipes on the counters, door knobs and light switches. This is something a small child could when they want to be helpful. Most infection is passed via skin contact. I now have Purell, paper towels and soap at each sink in the house now. There Purell on the night stand for Dick to use when he has to use the urinal because he can't make it to the bathroom. Most of the time I wash my hands with soap and water and then use the sanitizer before I flush his PICC line. The line has to be maintained every day with saline and heparin. I do not want him to get anymore infections.

Volunteer Coordinator
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15 years 11 months ago #15147 by julieann
Replied by julieann on topic Where we are...Raw Emotions
I feel like any words are so inadequate. All I can say is that you are in my thoughts.

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15 years 11 months ago #15138 by Gene Beane
Replied by Gene Beane on topic Where we are...Raw Emotions
Karen, What can one say except you have our love and our prayers, the little ones must keep you fairly level headed as they inspire life and hope. I am sure there smiles are welcoming in this time of sadness for you. You have done a wonderful job taking care, but I am sure feel helpless as well. Take care of you, Ginger

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15 years 11 months ago #15132 by fearandfight
Replied by fearandfight on topic Where we are...Raw Emotions
Karen you are an amazing strong woman and I know your husband is as well. I have follow your posts and I find you have a heart of gold because all you are going through you still find time to post and help others when you really need it the most. I know you and your husband are going through extremely difficult times right now and I honestly say prayers daily for you and everyone else that is walking in your shoes. I hope you can find some peace somehow because I know your nerves have to shot by now. I pray that God can send you some peace your way for awhile so you have some time to just relax because you definitely deserve a break for awhile. God Bless, Joe

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