bladder had to stay...next???

Patty,

I found this one too.

www.cancercare.org/get_help/assistance/cc_financial.php

All of the services listed have "800" numbers too. Sometimes speaking with someone is easier than navigating a website. Especially when you are stressed. I am not sure how they work but it is worth a try.

There is understaging and overstaging all the time...the PET/CT or CT with dye does not detect the microscopic cancers which might be lurking in a distant node...ie.,why they take so many nodes out........yes some may be very obvious...others not so. Additonal testing with chest x-ray, bone scan do their best to aid diagnosis. Its certainly not an exact science but you increase your odds with a top notch institution and top notch specialist that deals almost exclusively with blc..and that believe it or not is hard to find if you're a newbie. I actually remembered a advertisement that almost always appears in the NY Times magazine supplement.
"Cancer. Where you're treated first can make all the difference." I first hit the NCI sites and then the NCCN.org sites and weeded out from there.
As for the 47 million uninsured people in America and the countless others with insurance that doesn't cover a disease as devastating as cancer try www.cancer.org
to see if they can help or 1 800 ACS 2345.

I was just fortunate enough to read Marcus's blog. I'm not going to put the link here because I respect their privacy, but I do hope that Peggy will post the link.

What I can tell you is that Marcus and Peggy are extraordinary people and a beautiful couple. I'm not happy about their situation, but I'm happy for the time they have together and the time we have with them.

Zach

Hi Patty, here are a few links to check out:

www.acor.org/ped-onc/resources/airlineflights.html

www.cancercare.org/

www.cancer.gov/cancertopics/factsheet/support/financial-assistance

Does anyone know where the best site is to locate different clinical trials? Are there organizations that can help with Peggy and Marcus' bills, gas, telephone, flight?

I feel terrible for Marcus and Peggy this is such a devatating disease when it metastazies?! It is constantly changing directions, and just when you think you can handle whats ahead, there is another fork in the road. My heart goes out to them, and I hope they can get to a place in their lives, as well as with a Dr. that can give them some room to catch their breath!

God please be with them..