Peggy here. Marcus continues to live like every day is a gift. I'm learning that travel is different and still possible. I highly recommend it for those who can do so. Check out
www.marcusgettingbetterallthetime.blogspot.com - Marcus has a gift for writing and sharing about his journey with cancer.
The pouch is less and less of a bother. The cancer is in a lymph node in his shoulder and there are spots of it in his liver. They cut out taxol because it's too difficult for him. Now he's on a Friday (gemzar and cisplatin), Friday (gemzar and boosters), and then Friday off, schedule. PET scan the end of this month and then??? Likely he'll just continue with this schedule because radiation isn't an option anymore. He can feel the cancer which presents as a burning ache in his belly usually - I know he really wishes he didn't have his bladder. His bowels are moving better and this is most important. He can't nap, something he'd perfected, due to tense muscles, and sleeping is aided by Ambian and night time tylenol or lortabs.
Mostly, I'm wondering if any of you can share about what we might expect. While I understand that each person has a unique journey, I'm just thinking there must be someone who has a similar story.
EDAG Every Day is A Gift, Peggy