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Finding a good surgeon

12 years 8 months ago #39002 by Alan
Replied by Alan on topic Finding a good surgeon
The Comal River has been jammed this past summer with the drought on the Guadalupe! 10000+ a weekend day to where the authorities have actually had to restrict access. Keep us posted! We will both look at your situation as a crook in the road by this time next year!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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12 years 8 months ago #38996 by efoster4242
Replied by efoster4242 on topic Finding a good surgeon
You brought a smile to my face Alan. You brought back some fond memories of my childhood. I used to live in San Antonio in the mid 50's. One of our favorite things to do was to head to New Braunfels and the swimming pool lake there. Back then the swimming area was a dammed up river. Nothing like it is now, but loads of fun in those days. Everyone would pick a spot under the trees to set up their picnic area and all would enjoy the swimming and diving in the pool.
I am pretty confident in my selection, so now I am just waiting till the day comes. Nerve wracking at the least. thanks for the note and I hope all continues to go well with you.
Ed

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12 years 8 months ago #38953 by mmc
Replied by mmc on topic Finding a good surgeon
Great choice Ed! All the best for a successful surgery. You've done the homework and are ready.

I can tell you that it is way scarier on your side of the surgery than it is on mine. It's an investment in your future (which you get to have much more of).

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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12 years 8 months ago #38943 by Alan
Replied by Alan on topic Finding a good surgeon
Ed,

You have done very well in your choice. I live the other direction about 180 miles from Houston in New Braunfels, TX (home of Schlitterbahn)! While I am fortunate that my local URO is well versed in BLC and I have been able to keep my bladder, MD Anderson is my backup. Also, I have sent or had a few friends sent to Dr. Kamat. You are in great hands. Dr's Grossman and Denney are also well respected also. You will do just fine!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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12 years 8 months ago #38938 by CatherineH
Replied by CatherineH on topic Finding a good surgeon
Ed... Even though this is definitely major surgery, you can set aside much of the pre-surgery jitters knowing you have done your due diligence and assembled a team of doctors who are tops in their fields. You wouldn't be human if you didn't feel some anxiety going in, but you have done your part at this point.

Enjoy the beach!!!
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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12 years 8 months ago #38937 by efoster4242
Replied by efoster4242 on topic Finding a good surgeon
Hello Flyer, I just got back from MD meeting with more doctors, cardiologist, anesthesiologist, pulmonary doctor. All have approved the surgery, so now comes the hard part. Waiting for Aug. 24 to come while thinking about it. My wife and I will be headed to the beach the week before to just enjoy the time together.
I hope you get your wings back soon. I know you are antsy to get back in the air. Thanks for the info on the post surgery. I can prepare better knowing how each person dealt with the problems and of course what potential problems I will face.
Glad you are on your way to full recover. Long life is what we are looking. I will post as I go along with this procedure.
Have a great week.
Ed

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