How long - nerve sparing surgery to functioning?

14 years 6 months ago #27729 by skypilot
Mona thanks for the report, But I am 60 but feel like I am 40. and most say I look 45. Been married for 37 years so hoping thigs get back to normal or maybe something close to normal, But my wife is just happy that I survived , me to, She says we should just be thankful for what we had. So I am leaning that way. Don

Hanging in there!

Please Log in or Create an account to join the conversation.

14 years 6 months ago - 14 years 6 months ago #27724 by Mona
Hi Don, in answer to your question, My husband is back to normal size and function without any drugs/shots. I don't know if it's his age (35 at cystectomy) or his surgeon or just pure luck! Wishing you success...
Mona

Please Log in or Create an account to join the conversation.

14 years 6 months ago #27723 by mmc
I had high fever (over 102) and chills in addition to the regular symptoms. Risk of sepsis was too high to continue.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

14 years 6 months ago #27722 by Bill Jr
:side: Mike,

Question: I see you dropped out of BCG treatments after 2, why?

BCG is killing me! Today I phoned in and asked to go to 1/3 dose. Waiting to hear back :S

62
Turbt (May 09)
T1 High grade
Began BCG June 09 (every 3-mo for next 2-yrs)

Please Log in or Create an account to join the conversation.

14 years 6 months ago - 14 years 6 months ago #27718 by mmc
Can't speak for anyone else but I experienced reduced size when flacid and when erect. Fully erect only happens via the shot. Otherwise, only gets to half mast.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

14 years 6 months ago #27713 by skypilot
I am now 20 months post op done using davinci robot. Still no Joy, just about half mast. I am 60 now and hoping it comes back the drugs do not help and they give me a headach.:blush: In ? to those that did get it back. I have heard it is shoerter by about an inch. Is this true? Don

Hanging in there!

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne