OOps..watch that condom catheter

I think i've gotten us off topic haven't i?...Maybe we need a new thread.."What your Surgeon won't tell you?" Pat

Pat,

I agree. If I was a woman, I would have selected the Indiana pouch with a naval stoma.

For all the reasons in that article and others I've read that talk about women's issues, that certainly would have been my choice.

The idea of having to cath myself through the urethra just makes me cringe. I know that people learn how and they can handle it. If I had thought that was a high probability with my neobladder, I would have opted for the Indiana/naval also.

If it doesn't have to be messy, why pick an option with a high probability? Also seems like higher risk of infections if having to cath through the urethra.

I think, from a man's perspective, the neo is first choice. When I go to my feminine side, the Indiana pouch would be first choice.

Mike

I've read all those Mike plus many more...what i meant was they all say the same thing...makes it sound like they're just about perfect.....but from my experience listening to people with the neo I'm not hearing the same results..especially from women. Now perhaps only those with problems actually come to a site like this. Do they truly follow up with their patients and report actual findings...fudge it a little?.....I know i get a phone call once a year from someone at The Cleveland Clinic asking "How are you doing" and i say "Just Fine"...end of call. Back before the Hippa Laws when doctors could actually give you referrals of patients I remember getting 13 female referrals of neobladders that Dr. Stein did...I reached all 13. I found one success in the 13 and that person considered it a success because she could cath 4 times a day. I reported my findings to Dr. Steins nurse who was very taken aback and had no idea. Memorial Sloan could not refer me to even one female and thats a pretty big place!!
Like i said....my brain was just wandering all over the place:blink:
I've posted this study before on women and neobladders which explains why we don't do as well....
www.urotoday.com/3391/urotoday_international_journal/female_urology/hypercontinence_in_women_after_orthotopic_neobladder_diversion.html
free to access...just join........Pat

Pat,

The night time continence rates for neobladder are actually very high. It just takes longer.

Continence and urodynamic parameters of continent urinary reservoirs: comparison of gastric, ileal, ileocolic, right colon, and sigmoid segments. www.ncbi.nlm.nih.gov/pubmed/10443720?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=3&log$=relatedreviews&logdbfrom=pubmed

Comparison of orthotopic sigmoid and ileal neobladders: continence and urodynamic parameters www.ncbi.nlm.nih.gov/pubmed/15826762?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=1&log$=relatedarticles&logdbfrom=pubmed

Indiana pouch is the BEST for continence but being able to "go" normally is an attractive option with the high probability of both day and night time continence.

My VIP pouch has 81% night-time (6-7 hrs) continence rate: Vescica Ileale Padovana: a technique for total bladder replacement.
www.ncbi.nlm.nih.gov/pubmed/2311639 .

I've seen other documentation that daytime continence was around 91% and night time 82% but I can't find it.

In the "stretching" phase we are supposed to wake up every 3 hours. Then it can get extended to 4 hours but it is recommended that we always set an alarm for 4 hours so we don't stretch it too much and because the neobladder won't wake us up the way the real bladder did.

I'd certainly consider an Indiana if my neobladder goes for years without being able to gain night time continence.

Mike

Soooooooo.....i'm thinking here that neobladders really don't work that great for men either if you can't gain continence through the night or is it that you have to go every 2 l/2 hrs or what? Just curious. The surgeons all love to do the neobladder and report that everything is just hunky dory with them and everyone is joyfully happy with them...
They downplay the Indiana but hey i can sleep through the night..8..9 hrs..whatever..no leakage. Why don't the surgeons like to do an Indiana on a man?...Maybe men aren't as tactile as women with the ability to cath through a stoma?
Sorry just having a stream of consiousness thing going on
Pat

I didn't bother looking at the article/pix after reading Mike's comments...I just wanted to add that Harry is in agreement with Mike 100%. After Mike posted information about the condom catheter we contacted Harry's surgeon and got the Rx for them. Harry is continent during the day, but never gained continence at night. After trying the CC he, like Mike, was amazed and now sleeps soundly through the night. THANKS AGAIN MIKE! Margot