Wayne's World Wife Questions

Patti...have you gone to this page at Johns Hopkins? They'll recommend hotels and tell you just about all you need to know.......


www.hopkinskimmelcancercenter.org/kpr/for-pts-and-fams-during-your-stay.cfm
Pat

You might also ask the hospital if they have any special arrangements with local hotels. My wife got a special "USC" rate that was even lower than AAA.

hi patty - thanks for the reply. as far as i know my husband's surgery is in the marburg building. i am staying in a nicer hotel because i don't want to feel any worse than i already do. we stayed at a day's inn when he had his initial appt. with dr. schoenberg. it smelled like smoke in the room even though it was non-smoking, and the neighborhood was not very nice. so my husband insisted that i stay in a nicer part of town when he has his surgery. what can i say - you can't take it with you! anyway, i hear that they wheel in sofa beds in certain hospitals because they're happy they have someone watching the patient at all times. i know that's true at cleveland clinic - i can't imagine it's not the case at hopkins.

glad to hear you have the zero gravity chair at home. i wrote it was from the "frontage" catalog, but i meant "frontgate". anyway, make sure you do your posts - i hear they have a computer on the floor in the lounge with internet access. if you have a laptop, bring it. your hotel probably has internet also. i am counting on you to show me the ropes! but i sure hope you're home by the time we get there on nov. 5th.

we're thinking of you and wayne.

eileen and michael g.

Patty, The room may be cheaper wih triple AAA, do you have that out there, I saved one hundred bucks a nite, but the Hotel was 239.00 so I paid what you did. I think your ready to go and get it over with... Ginger

Hey Eileen!

I actually have one of those chairs at home, but didn't even think of that? We are staying at Hilton Garden Inn at White Marsh, it's 139.00 per night with JH rate. They said I could buy coupons to park in the main parking garage at the hospital that would be cheaper than the daily parking rate. They don't really know which building Wayne will end up in after his surgery, so I want to wait to see where he is staying before I make my parking choice. His surgery is in the Weinberg Building. (I think thats how you spell it?) They told me yesterday that if I get a private room it's $5.00 extra? I will let you know what I find out. I will do my best to let you guys know what's going on.

Patty

hi patty- i just read your story and replies this morning. PLEASE PLEASE do daily updates. my husband's RC is with doctor schoenberg at hopkins on nov. 5th, so i want to hear every single word. i asked the scheduling office for a private room and was told it was no problem. i asked how much extra it was and they said $5 or $10 extra. i'm sure that's not right but i didn't argue. i called one of the patients on schoenberg's list and he said it was about $250 a day more for a private room but if you could afford it to ABSOLUTELY get it. so i will keep asking/demanding.

anyway, i emailed schoenberg once to ask him the length of the surgery and he said 3-4 hours, and that's why our husbands are going to him - he's one of the best. as far as the shawl - go to bed bath and beyond and get one of those fleece throws for about $10 - i don't think you'll want to keep any of the surgery stuff when it's all over and behind you. you definitely won't want a robe or anything requiring movement to put it on - he will have lots of tubes. i am bringing one of those zero-gravity reliners - they sold them over the summer at bed bath and beyond - it's an outdoor chaise lounge. i actually have the version from the frontage catalog - it was expensive but it's way lighter than the BB and B version. maybe you have a friend who has one and you can borrow it. i also asked at hopkins about getting a private nurse and they said it's now allowed because they have special urology nurses - 1 for every 2-3 patients - and a private nurse that you would hire would not be allowed to touch your husband. so i feel quite comfortable with the amount of care my husband will receive. i am staying at the sheraton on the harbor - it's $184 a night for hopkins patients - normally costs $329, so it's a great discount. parking is $20 a day with in-and-out privileges.

anyway, my husband has one more gemzar treatment tomorrow, and then we're done with that chemo. he played 18 holes of golf yesterday, then hit some tennis balls with a friend afterwards. today he's playing tennis in the morning, then another 18 holes this afternoon. trying to get in all the fun before the shit hits the fan in two weeks. he was quite lucky with the chemo so far - didn't lose any hair, which certainly makes you feel better - at least when you walk down the street everyone doesn't immediately know that you have cancer when they look at you. 14 days till surgery - i can't wait and my husband wants to run away. i bet you have the same situation in your house. please keep in touch - i check this site multiple times per day.

eileen, mike g's wife