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Happy Birthday to my neobladder

11 years 11 months ago #9593 by Andy_D
Well done for getting through the year in good shape. I had my neobladder on Nov 6th, and have been following your posts. As someone with a neobladder of about the same age, I wonder if you could read the question I have just posted and tell me what you think? Many thanks, Andy.

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11 years 11 months ago #9182 by timb
Eileen

I don't mind at all. I wear pants at night right now and they are more often dry when I wake up than not. Usually if i've wet the bed it's because Ive slept beyond my wake-up times or been careless with beer/caffeine. It probably happens once every two or three months. My regular nighttime regimen is that the night is broken up in 4 hour chunks. I set the alarm 4 hours after I go to bed and wake up and pee at that time and set it for a further four hours. Like I said nine times out of ten I am dry when I wake up. I would also add that I've been lazy with the pelvic floor exercises and, against recommendation, I drink after 6 at night. I think if I stayed within the recommendations my continence would improve measurably. but Im pretty happy and a bit vrap at going the extra distance! You find a level you can live with and kind of stay there. if I stay at someones house then I take some pants and am more wary of over-drinking. I've never soiled a sheet in anyones house yet!

What I really like personally about the neo is the daytime performance. I don't rely on any apparatus and that, for me, is a big plus. I don't catheterise and I can go for three or four hours between pees. I don't have to carry any additional gear with me in the day. I pee just as I did before and use urinals when out and about. 1 year on and days seem completely normal to me. if im desperate then I get the sensation of pee entering my penis just like before. Then I clench and go as soon as I can. I never wet myself in the day.


all the best


tim

PS I was undecided between the mitrofanoff (indiana) pouch and neobladder until the day of my surgery and Im completely happy with my choice. both have advatntages and disadvantages and you will learn to live with either. the indiana doesn't have a continence guarantee either, though and I understand the neo can be "converted" later if you are not happy with it

ATB

Tim

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11 years 11 months ago #9172 by mikeg
hi tim - congratulations on your milestone - that's so great!

my husband is having his RC on nov. 5th. he read your post and was not happy to hear about your nighttime incontinence issues a year out of surgery, since he is still a bit iffy between getting the continent diversion (indiana pouch) and the neobladder. so if you don't mind my being so personal, and you can reply in one of those private messages, or else email me at This email address is being protected from spambots. You need JavaScript enabled to view it., can you please tell me exactly how incontinent you are? i would really appreciate it so much. my husband's surgery is in 14 days so it's important information. thanks!

eileen, mike g's wife

Michael
Age 58
Stage T2-T3, muscle invasive
Married to Eileen
2 sons, ages 20 and 23

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11 years 11 months ago #9145 by timb
happy birthday Betty. sorry it's a bit late!

all the best

tim

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11 years 11 months ago #9138 by Martha
We celebrated our 1st anniversary on the 18th. "Betty" is doing great and hasn't given me any problems. May we all celebrate together again next year.
Martha

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11 years 11 months ago #9121 by timb
yes, the mind has a geat ability to forget. I know the surgery was tough but - and I know I don't have to! - I could almost face it again now. I think the worst memories went withing 3 months

tim

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