brand of outside pouch

16 years 6 months ago #7809 by RAH
Replied by RAH on topic brand of outside pouch
Thanks for the tip Texan.
When I start jogging and bike riding, if I start having sweat induced leaks I will remember the Surgical Adhesive Spray.
Heck, for that matter any consistent leak I will remember your tip.

Six Year Survivor - what a battler :D
Rick

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16 years 6 months ago #7801 by Texan
Replied by Texan on topic brand of outside pouch
Re: Leaks
Once my husband recovered from the surgery and was working again, he had frequent leaks. He's a farmer and works outdoors a lot and the sweat would make the wafer come unstuck. To solve the problem I bought some Surgical Adhesive Spray and that fixed the problem completely You'll also need to get some Unisolve pads to remove the adhesive residue when you change wafers.

The cancer had an aggressive profile and the doctor said we'd know within two years if he was cured. Thanks to God, so far so good. My husband is a six year survivor. My best to all fighting this battle.

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16 years 6 months ago #7795 by RAH
Replied by RAH on topic brand of outside pouch
I appreciate the well wishes.
I had read about having the Chemo before surgery and knew that statistics for survival are increase with pre Chemo (I keep telling myself not to look at stats). My doctor did two TURBS and both biopsies showed that the cancer was not in the muscle wall yet. But those dang cells figured a way in the two weeks before last TURB and surgery to get not only into the muscle but outside the muscle.

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16 years 6 months ago #7792 by New2This
Replied by New2This on topic brand of outside pouch
To Martha - I have sent off for a Cymed sample, so he will try it out.

Rick, best of luck on your chemo. If things go as planned, my husband will be having his in Sept too. I'm wishing/praying for you both to have no bad side effects!

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16 years 6 months ago #7791 by Mike
Replied by Mike on topic brand of outside pouch
Rick I wish you luck with your chemo I thought you already had that done. This is where I was glad I went with my surgeon since the cancer was contained in the bladder to do the pre-op chemo first then the surgery and now I am done with it. It seems to be Week6 where the chemo kicks in and starts taking its toll. I was told this from my Oncolo's nurse and she was about right on the button. you really just don't realize how it really wipes you out I was more tired then anything and I could live with that better then being nauseous all the time but there too I had my days and the competzine worked ok for me there are others like Zofran but they cost $35 a pill and my Ins Co (Keystone65 ). would only give me 6 a month so I saved them for the real bad times. But b4 you know bingo your done and just hope the chemo did its job good luck. Joe

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16 years 6 months ago #7788 by RAH
Replied by RAH on topic brand of outside pouch
Paula,
Your husband’s surgery sounds very similar to mine. In for a NeoBladder out with an urostomy bag. My surgery and recovery went smooth. Now I get to start my Chemo in September. I am hoping the butt kicking isn't a part of it. If it does start kicking my butt, I will rely on input on how discomforts were minimized.

Anyone going back to a work wearing a Urostomy bag my suggestion is to have a plan in case there is a leak. Not only do you have to worry about the wet showing, you have to worry about the smell, and a comfortable place to change.
I only had one day when I leaked at work. I work for this big aerospace company in the Seattle area. I bring a change of clothes and all the 'stuff" I needed for a urostomy change in my trunk. Only thing is that there really wasn’t a place to change in comfort. Since I needed to shave, I ended up going home (25 minute drive each way). I am coordinating with my management to work with the company medical facility to see if I can use one of their rooms if I need a quick change.
Rick

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