One great tip I received on leakage: One day before changing pouches, put adhesive on the pouch.
I use Torbot, but I know there are others. Put it on heavy and let it sit overnight. I got this from a
person that had both a urostomy and colostomy. I haven't had a leakage problem since. Nobody I know in the stoma community has ever heard of this method. Give it a try and good luck!
I am 78yrs,had aileal conduit surgery 35days ago.&am recovering .Am almost back to normal-no dependency from my family members.
I am facing two discomforts
1) Urobag leak as being discussed in the post.
I have been doing all trial&error method and learnt to see that the 'sagging'of the bag is minimised -by putting the Urobag into a special pouch stitched at the inside of my shirt(serving 2purposes-to house the bag ---to hide my stoma bag ).
During sleep I have contrived a device which keep the nylon connector and the tubing to have the natural gradient so that the urine flows constantly to the night drainbag without bulging the staain bag.
THE PROBLEM YET TO BE ADDRESSED IS:-
My stoma bag gets filled up in 50 to60 mts.I am scared to venture into any travel which takes more than an hour.
I am on a carpool and cannot carry my Night drain bag.I cannot afford to employ a driver who demands skyhigh.
CAN ANYONE IN THIS HELP ME TO ALLAY MY FEAR .
Dear SC, Experiencing exactly the same thing as your Father. Specifically requested an experienced home care nurse familiar with my set up like your Father. Nurse didn't know as much as my wife and I and I continued to have leaks. Received a referral to a medical supply company specializing in urostomy. The owner, a nurse quickly identified my problem and why the leaks were continuing. We had been using a single bag application & applying it while lying prone. Nurse said it should be applied either standing or sitting and not prone. She applied a 2 piece bag type explaining it would be more secure. She said reason for my leaks was the wrinkled skin in this area not allowing the single piece bag to fasten securely. As my abdomen heals and gets stronger the wrinkles will tighten up. Works great now. I wanted to connect a larger bag to my pouch for sleeping. Check with 2 other medical supply businesses who did not have a clue for the transition piece needed. This nurse had exactly the transition needed. My surgery was on July 26th so I am still learning. With leaks you cannot have any piece of mind. This is my first time on the forum and don't know if I could give you the contact for tis nurse but she would be happy to talk with you. For me, an Angel in disguise. Good Luck for your Father.
There is also another wonderfully helpful site for those with ostomies and it is www.uoaa.org. There are so many experienced people there who are willing to offer suggestions and advice. However, be aware that people there have different types of ostomies: colostomies, urostomies, and one more kind that escapes me right now. You can read without signing up but it is free to sign up and ask questions.
My Dad is 84 now and had some trouble with his "appliance" at first but now seems to have it down to a science in the 4 years he's had his urostomy. He changes twice a week and hooks up to a bottle overnight. I think my Mom actually does the change for him, but he says he only lets her so she will feel "needed". He tells me he can easily do it for himself. He uses an Eakin seal to fill in the gaps that seem to come with bellys and uses Hollister two-piece appliance.
Companies will send you samples of their products to try. Just call them and ask. I think it must get easier with practice, especially if you find the right product for you (which might change down the line.)
I get the feeling that the uro doesn't give a hoot about your problems now that they have got your money. Not nice of me but sometimes I just feel like they blow me off.
I change my wafer in the morning when the stoma is less active. As I said before I let the water run on the stoma and use soap to clean it. I clean the area before with an adhesive remover pad because I also use a
Eakin Seal on my wafer. After I get out of the shower I use the skin barrier to make a good seal and then I use a gauze pad to wipe it dry. I feel this works good for me. I also sit on the toilet when I am doing this. I don't know if things are different for a man or not. I hope this will help you. I also feel that no one seems to help with any information, we are on our own with the help of this site. The people here are just wonderful. Good luck
pT3a no mo
Rc with Ileal Conduit on 6-09-08
2nd surgery on 6-27-09 for ureter leak
Renal failure on 7-01-09 nephy tube and then stent on 7-09-09
so far so good