invasive bladder cancer

17 years 9 months ago #679 by surfman
Replied by surfman on topic invasive bladder cancer
No, Jeff. I have a Grade 4, stage 3 invasive bladder tumor and I am having tur, followed by chemoradiation. Studies show that this is just as effective as bladder removal. Check with your local teaching university, but don't always listen to the urologists.

Good Luck, Jim

live aloha, Jim

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17 years 9 months ago #678 by surfman
Replied by surfman on topic invasive bladder cancer
No, Jeff. I have a Grade 4, stage 3 invasive bladder tumor and I am having tur, followed by chemoradiation. Studies show that this is just as effective as bladder removal. Check with your local teaching university, but don't always listen to the urologists.

Good Luck, Jim

live aloha, Jim

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17 years 9 months ago #654 by Jeff_Gill
Replied by Jeff_Gill on topic invasive bladder cancer
Bob,
Great news about your recovery.
So you have the type of neo -bladder where you control urine release ?
Or do you need to empty it during night? Well you be continent at night over time?

Jeff

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17 years 9 months ago #651 by BobinNJ
Replied by BobinNJ on topic invasive bladder cancer
I had my RC on April 25, preceeded by three months of Chemo. The chemo was effective in reducing tumor enough that they were able to do full neo-bladder, which at first did not seem like an option. All done at Sloan Kettering in NYC- can't say enough about how great the hospital, doctors and all associated were thru the whole thing.
Now my recovery is ahead of schedule- I'm fully continent during day and almost so at night. At night I wear a pad and get up 2-3 times, but with only occasional leakage. No restrictions to my activity.
Best advice I can give is find a Doctor who does a LOT of neo-bladders, like 40-50 per year, not just 2 or 3.

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17 years 9 months ago #637 by Jeff_Gill
Replied by Jeff_Gill on topic invasive bladder cancer
To mother of 3,
Sorry about your dad.
If I can ask you a few questions.
Did he get a second opinion?
How long ago did your dad have the operation?
If a while ago is he still active as before?
What type of bladder did he get?
Did they also remove his urination tube (can't remember the name)?
Is it leaking at night or during activity?

Thanks
Jeff

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17 years 9 months ago #636 by motherof3
Replied by motherof3 on topic invasive bladder cancer
Hi Jeff,

My dad had a radical cystectomy and prostatectomy in March (removal of bladder and prostate).  From my understanding, each case is treated differently.  From everything I've read it looks like there are pros and cons to both removal and non removal.  If it is removed, hopefully it wouldn't recur, but you would have to deal with the pouch or neobladder, etc.  My dad has had no problems with the external pouch.  His belief is that if he has to have the pouch in order to extend his life, it was a fair trade off.  However, He had grade 4 tumor with 1 lymphnode involvement, so it was a little bit different situation.  My dad is 59 also and like you, very active, non smoker, etc...
Please keep us up to date with your decision and your progress.  You will get through it.  Just take it one day at a time.

-Mother of 3

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