New member - just saying hello!

16 years 7 months ago #7169 by Patricia
Replied by Patricia on topic New member - just saying hello!
Why so much saline? I was told no more than 30cc's......Thats an alful lot....anyone else done that? Pat

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16 years 7 months ago #7168 by xcv461
Replied by xcv461 on topic New member - just saying hello!
I emptied and then put 400 saline in and got it all out so I'll try 500 saline in a couple days,must be stretched pretty good, but always leaks.More in the bag then I get out of bladder.

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16 years 7 months ago #7044 by xcv461
Replied by xcv461 on topic New member - just saying hello!
Just emptied,I had 300 in the bag and got 200 out of the bladder after 4 hours.

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16 years 7 months ago #7039 by xcv461
Replied by xcv461 on topic New member - just saying hello!
There has to be a nerve right at the beginning of the stoma,when I start to tube I can feel it and it really hurts when I put it in,and for 20 or 30 minutes after.The VA in IL did the surgery,but now I'm in Florida and the VA doesn't seem to care, the doctor told me to drain ever 2 hours.I would never be able to stretch it that way.I can go to 4 hours but it always leaks.I have to start measuring how much comes out.I don't have a stoma nurse down here yet the last one just retired.

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16 years 7 months ago #7000 by Patricia
Replied by Patricia on topic New member - just saying hello!
Good for you Bjmac....i would think this would be great information for stoma nurses in particular to have.........You know surgeons/consultants...they cut......doh.........Sure am glad we have this forum...Pat

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16 years 7 months ago #6995 by bjmac
Replied by bjmac on topic New member - just saying hello!
Hello Pat - you wanted to know more about expectations from my Consultant to increase the capacity of my reservoir. I started by increasing the time before emptying a half hour at a time - 3 hourly, then 3.5 hours - then 4 hours. I am now emptying regularly 250 - 400 and usually go 3-4 hours. I do try to go longer because I want to reach the targets set to me. The Consultant says it will be much better for me long term.

The only time I can go longer is through ther night - sometimes 6 hours - then I can reach 500. I have had one time when I managed 700 - but that was just once!

I have relaxed since hearing what you and others acheive and things have been much better. I no longer try to last 4 hours - if I feel I need to then I empty after 2.5 or 3 hours. Sometimes this is necesary if I am at work and want to feel safe. I have had one or two embarasing moments.

I went to see my consultant a week or so ago and I thought they would be pleased with the information about the affect coffee and dairy products had on me and the difference it made but they didn't seem particularly interested. I think that is quite sad really as the information could be passed on to others. I told the district nurse who works in the local community and she was delighted and went off to share the information with another of her patients who was experiencing leaking.

BJ

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