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Urostomy & Kidney Stones

13 years 3 weeks ago #5416 by wendy
Hi Harland,

Welcome to the forum. It seems that the neobladder and pouch-ers outnumber those with ostomy's on this board, so I'm glad for your experience with an ostomy here.

About the stones, what about that non-invasive technique, shockwave therapy? Why cut if there's another option to blast those things, is that not an option for you? I know it's expensive, but hopefully insurance would cover that, I'd think.

PS we also have an active email group that discusses things related to all stages of bladder cancer, also short on ostomates, more neo's, pouches and non-invasive tumors, but lots of comraderie.

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13 years 3 weeks ago #5411 by Harland
Has anybody had kidney stones and if so what did you do. I have had various suggestions. Have surgery and have them removed immediately. Wait an see if you can pass them since they aren't giving me any discomfort.

I have had my urostomy for 5 years, but this is the first time I had stones.

I am so glad to have found this site which is more or less dedicated to bladder cancer. As you know things aren't always the same for urostomys and cystomys sorry about my spelling.


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