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Minor post-cystectomy bleeding

11 years 11 months ago #9605 by timb
hey andy

it's me again! no probs at all. i haven't had the specs for a good while now and I did go with the antibiotics. the specs did appear again a while after these and I don't know 100% whether the bowel infection was to blame. I did have a cystoscopy recently and nothing was seen. Feel free to PM me with any issues.

take care

tim

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11 years 11 months ago #9596 by Andy_D
Tim. there I was writing my post/question, thinking "I am sure somebody wrote about this a while back!". So I kept going back through the posts, and found that it was, in fact, you. So, how has this aspect of things gone on? Has it cleared up? Did you go for the antibiotics in the end? If so, did you ever have symptoms of UTI, or just the specks of blood and bugs in the urine?

Thanks, Andy D.

P.S. For a more complete summary of my story, I have started a post today.

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12 years 5 months ago #5267 by Patricia
Tim..my senile brain doesn't remember....i know i had them almost as soon as i started cathing.....very intermittant.....but i can't remember how long it went on?? I'm a big help. I actually had a small one last week but figured i'd scrapped something going in with the cath and i haven't had any since. I have a CT this friday so lets hope its nothing........Pat

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12 years 5 months ago #5262 by timb
thats exactly what they are; little clots. was it this long after pat? i.e. 6 months?

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12 years 5 months ago #5261 by Patricia
Hi Tim....i don't have the neobladder but the Indiana Pouch but i had intermittant tiny little blood clots after my surgery...they said that was normal????????????? Pat

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12 years 5 months ago #5254 by timb
I had a cystectomy and neobladder about 6 months ago and all has gone really well. about 2 months ago I noticed small specks in my urine that looked like blood or certainly debris. I went to the hospital where they did a culture test to check for infection (it came back positive) and also a cytology test to check for any malignancy. This came back negative. I went on a short course of antibiotics - Trimethoprim - which seemed to clear the specks up - although I can't be sure as they seem to be intermittent. I get no other symptoms apart from the specks being there occasionally. They are very very tiny. Has anyone else with a neo bladder experienced this? Im not keen on keeping taking antibiotics and think having a day off work and a good flush through may help? Ive put in another call to my healthcare team and am waiting for a call back. Im not particularly concerned but wouldn't mind getting to the bottom of it.

All the best to everyone

Tim

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