I'm going to get in touch with my doctor today. It's gotten a little worse actually. This morning I wasn't able to pass anything at all, I had to cath myself. It's probably the scar tissue thing again; it just seems odd cause it kind of happened overnight. When this happened before I noticed a gradual decrease in my urine flow, this time it's just completely plugging up.
I thought it could have been the mucous becuase I noticed an increase in the output and it also appeared thicker...ugh.
Mike i'm not sure about the guys protocal with neobladders but with the pouch if i seem to be getting a lot of mucuus i squirt about 30cc's of sterile saline solution into the pouch and that breaks it up. Pat
If you go to the home page (click on the web at the top of the forum) and type the word [url]mucous[/url] in the search engine a whole lot of anectdotal info will come up, from people who've posted their stories in the Trenches sections.
Oof, sorry to hear about the scar tissue ops, that must have been no fun...
About mucous, people with neobladders and pouches usually find that it's highly connected to diet and fluids. I've heard that drinking more water will help and avoiding too much dairy. Some people have more than others, some have almost none at all. It's normal but not if it's causing the need to catheterize!
Sorry that I didn't provide enough information on my initial post. Yes, my urologist had told me that I was having "absorption" in the neobladder and that was causing the negative blood tests. If I remember correctly my potassium level was too high and the carbon dioxide was too low. I quit taking it because my blood work came back fine on the last visit and another doctor I'm seeing questioned even why I was taking it. Too many doctors with too many opinions? It gets confusing.
Since my Cystectomy I've had to go back in and have scar tissue cleared from my urethra on two different occassions. The last procedure was done this past January. Everything was going fine and then all of a sudden I started having trouble urinating; it happend like overnight and I noticed the mucous output was getting heavier. I'm guessing now that it's the scar tissue again...sigh.