Hello, Chris! First, you may notice that I moved your post to its own thread, in a place where more people may see it. Second, congratulations on the news that it appears that they got it all!
So sorry to hear that you ended up with a diversion that you feel does not suit you. It seems that in many cases the urologists do not do their best to match the diversion to the patient.
Please remember that we are not doctors here, so take our advice accordingly. If you are really convinced that you need to change your diversion, you should seek out a major center that specializes in bladder cancer diversions and request a second opinion. This would be complicated surgery and you want a place that handles such cases. Not knowing where you are located, I would just suggest as examples the University of Chicago, USC, Stanford, MDAnderson, Johns Hopkins and Memorial Sloan Kettering. There are others.....you might want to inquire via telephone conference or email to get started.
Good luck
Sara Anne
