Lymph nodes

6 years 4 months ago #54458 by lotech35
Replied by lotech35 on topic Lymph nodes
CT last friday. Going to see oncologist this morning. Very anxious but i want to know. Tree is up and decorated some good news would be great. But if not early detection is good too.

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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6 years 5 months ago #54362 by Alan
Replied by Alan on topic Lymph nodes
LoTech and Jack,

Guys, I really look forward to your posts. I care about each of you and learn not just more about our cancer journeys but, about life also. Here is to only good news going forward!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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6 years 5 months ago #54361 by lotech35
Replied by lotech35 on topic Lymph nodes
Jack
Sorry your going thru this too, i wish something or a miracle cure would appear out of the blue and we'd both could just enjoy our families with out the shroud of cancer hovering above us. I await my next CT
With anxiety but has to be done. But that's 3 weeks away so until then my friend

HAPPY THANKSGIVING TO YOU AND YOUR FAMILY! we are still in this. Fight!!!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
The following user(s) said Thank You: Jack R

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6 years 5 months ago #54360 by Jack R
Replied by Jack R on topic Lymph nodes
Lotech,

So glad to see you on the board.

I know you can hang in there. Sometimes it seems that we just have to adjust our idea of what would constitute a GREAT outcome.

My situation changed a month ago, and we are still sorting out a new game plan.

I have only one kidney, following my accident in the past, and that kidney has developed RCC - Renal Cell Carcinoma, a distinctly different cancer from the CIS & papillary bladder cancer (the bladder has been free from cancer for 6 months now, after continuing BCG and adding other drugs to the mix.

The roller coaster ride hit a real high on 6 months free of bladder cancer, but took the plunge on the Kidney cancer.

The new kidney doc is hopeful for keeping at least enough of the kidney to make a working bladder useful.

I put off everything until after Thanksgiving, the time when all my kids make the annual pilgrimage to farm, and the grandkids and grandpa have a great time doing farm and rural activities.

The near future of pre-surgery chemo, bcg maintenace for the bladder, and partial kidney removal comes as quite a shock from the hoped for course - as you well know. But, on the bright side, worse come to worse, for me, there is the possibility of doing without any kidney, lose the bladder, and move to dialysis as a life enabling plan.

I'm not ready to cash-in the chips and move on to whatever is waiting beyond, so I accept what is offered as an additional chance to continue to enjoy the gift of life and family.

Lotech, I wish the same for you and yours.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
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6 years 5 months ago #54308 by Alan
Replied by Alan on topic Lymph nodes
LoTech,

The mind trick I would do is try remind myself that you are further along with all you have done to beating this back. We are with you.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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6 years 5 months ago #54303 by lotech35
Replied by lotech35 on topic Lymph nodes
Alan,

Me too I'm so tired of this. Walking around with tubes and bags hanging off my body and carrying a pump that puts 24hr antibiotic in my chest. I'm at white end! Wife took today's news ruff doc gave her a hug told her not to worry. Never did that before. I don't know this is just getting old. Still fighting but I'm getting tired.

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
The following user(s) said Thank You: Alan

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