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THE PATH TO RC

1 year 11 months ago - 1 year 11 months ago #53983 by Alan
LoTech,

Thanks for posting. Here is knowing things go forward and upward from here!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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1 year 11 months ago #53981 by Jack R
Lotech,

SO GOOD to hear from you.

It was my hope that things went so well that you was off to Europe celebrating. I chose to not consider any other sort of celebration.

After all you have been through, learning to walk again will be the easy part. You have already learned that skill once. This time around you don't get to ride in the pram - other than that it is about the same.

All joking aside, I have been looking for a message for you daily.

WELCOME BACK

Super Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis
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1 year 11 months ago #53980 by dtat60
Dude!!! I was wondering how things went. Glad your back from the other side. Did you end up getting the Indiana pouch as planned? I hope you have a complete recovery and soon.

Peace and Love,
Dave

08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG
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1 year 11 months ago #53979 by lotech35
Im still here! I had surgery on july 22, major complications hands are still shaky. I was comatose for a month so I dont remember JULY-AUGUST. I cant walk due to removing tissue that was cancerous. took out lymph nodes found cancer 2mm. the walking ability may return Im banking the nerve was just agitated. Im out of ICU and got hold of a laptop. Im still gettting small surgeries and learing to walk again.but I'm alive!!!!!!!!!!!!!!!and the cancer is at bay for now!!!!!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....
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2 years 4 weeks ago #53737 by Jack R
Lotech,

No matter how long the planning and anticipation of addressing a problem with surgery, the uneasiness and second thoughts always hit a day or so ahead.

"Maybe this will go away by itself, I try to convince my self. Or maybe there is a magic cure in (pick an exotic destination) that would be worth trying. Maybe I should cancel tomorrow's surgery."

Been there, thought that more than once - then it is time for the real consideration of the situation. All the reasonable non-invasive treatments have been tried; it is time to go ahead with the choice that we tried to avoid. Suddenly, it feels to good to have had, and always have, a back-up plan for the 'just in case'.

Embrace the changes and move on with your new normal life.

Best to you and all your support team,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis
The following user(s) said Thank You: lotech35

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2 years 4 weeks ago #53734 by lotech35
Jack

I will, just reflecting on my last days before the big change, no more urinals! Its funny you never even know about the organs in your body until they act up. I never even thought about my bladder, the last 2 years that's all I've thought about. still stinging from the biopsy yesterday, and a little scared about Thursday but will see you all on the other side and tell you how it went!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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