Got a few tracks on my arms from the infusion sites, feeling a little nauseated but doing well, next step CT SCANS , seeing an Ostonomy nurse, and Colonoscopy, all this month. I've decided on the indiana pouche since the learning curve on it will be easier for me and more continent at night. It will feel strange to have an opening in my belly but that beats cancer!!. Last 5hr CHEMO had me out for weeks but last 2hr not so bad, I will try to add to this forum as things change for update.
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
Sorry to hear that they can't or don't use a PICC line instead of tearing up your arm veins. With only 2 more to go, you are on the home stretch. Keep your eye on the prize and keep us updated. We are all pulling for you beat this BC and move on to your new normal.
Best,
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
Whew! still recovering from last round of chemo, my arms are marked up from the treatments, hard on the viens, and upset stomache. Only 2 treatments to go! Then a colonoscopy and surgery. I know Doc says im a good fit for neo but the indiana pouche sounds better daily to me. Being continent day and night is what im looking for. I spoke with a pouche user last week 10 yrs out he is doing great! Still have time to decide surgery in july.
Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
I can only imagine your frustration. We all hope that the intravesical treatments will let us avoid chemo, but thank goodness there is a backup treatment. I hope you and those close to you are holding up OK through all of this. The people around me feel the stress maybe more than I do - for them, the watching is hard; it must be the same for you and yours.
I hope that those who are supporting us in treatment for BC are focusing on the goal of treatment instead of the side effects while getting there. I hope the next round is easier on everyone.
Best,
Jack
6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
