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THE PATH TO RC

2 years 7 months ago #53590 by Jack R
Geeez Lotech,

Sooner or later all these 'side problem' are going to have to stop, and you can get on with the main event. Nothing worthwhile ever seems to come easy.

If the blood thinner they have you on is Lovenex, I bet you have the most interesting red splotches on your belly - I asked if they had in in blue and yellow, so I could try for a tie dye effect.

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
Until next scope :) :)
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2 years 7 months ago #53582 by lotech35
2 weeks out from last Chemo, CT scan shows i have blood clots in my lungs so now i get to inject myself twice a day in the belly with a blood thinner. Im told the Chemo does this to others so it was a possibility, just hope it dosent delay surgery!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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2 years 7 months ago #53510 by Jack R
Lotech,

Thanks for keeping us posted about the journey. Wishing you an easier road ahead.

Best,
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
Until next scope :) :)

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2 years 7 months ago #53502 by lotech35
Having Chemo done is a fantastic feeling, i truly didn't enjoy any of it! As far as using my belly button for the location I think thats worth asking! Still woundering what it will be like but I know its doable! Thanks Cynthia!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial....

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2 years 7 months ago #53501 by Alan
LoTech,

Congrats on finishing the chemo. You ARE beating this and you are my new hero. Thanks for sharing!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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2 years 7 months ago #53500 by Cynthia
Getting chemo behind you is a great feeling isn't it? I asked to have my stoma in my naval if possible. I was told they would if they could and they could. It is there easy to get to but my little secret. Just a thought it couldn't hurt to ask if you are interested.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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