THE PATH TO RC

6 years 9 months ago #53668 by DougG
Replied by DougG on topic THE PATH TO RC
Lotech,
Praying for you. Hope all goes well next month on the 20th.
Anita

Anita
Forum Moderator
Caregiver
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6 years 9 months ago #53667 by Alan
Replied by Alan on topic THE PATH TO RC
Still listening still praying and with you!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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6 years 9 months ago #53666 by lotech35
Replied by lotech35 on topic THE PATH TO RC
Jack,

I sometimes wounder why things seem to keep piling on, but I know what has to be done. I have my family still to take care of so i need to get back on my feet.

Im thinking the worst case scenario, loss of one kidney and an external appliance. I know im not the only one facing this but sometimes it feels like it.

Jul 17 will decide the next course what ever happens RC on the 20th. I'll keep you posted

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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6 years 9 months ago #53665 by Jack R
Replied by Jack R on topic THE PATH TO RC
Lotech,

I keep waiting for you to post the good news that the caner is out and gone.

All of us here know that we will do whatever is needed to get through this BC. Yours is the current story reminding the rest of us how many twists and turns can happen along the way. One day things are looking up, the next day not so much.

Thinking good thoughts for your and yous as you be begin another ride on the emotional roller coaster waiting for yet more information from the next inside inspection.

Best,
Jack

6/2015 HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one & only kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo# 3
Begin year 4 with cis
2/19 Chemo #4
9/19 NED again :)
1/2020 CIS is back
Tried Keytruda, stopped by side effects
Workin on a new plan for 2021
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6 years 9 months ago #53664 by lotech35
Replied by lotech35 on topic THE PATH TO RC
Well just left the Urologist Office, not great news. a spot has been found on my right ureter. wasn't there before chemo. Doc says we will have to view it under anesthesia to see if its cancer. if it is Ill lose my right kidney as well as my bladder and prostate next month. This will mean I will get an external bag vice internal. I always new that was a possibility but put it in the back of my mind. Its a sad in a way but bottom line I need to get rid of this cancer! Here's hoping for the best!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.

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6 years 10 months ago #53609 by lotech35
Replied by lotech35 on topic THE PATH TO RC
LOL!

Yep purple splotches on the old belly good old Lovenex , still needle shy but I guess with time it will get easier. Surgery still set for July so Doc visits and a colonoscopy, Your right Jack these side issues are a pain!

Diagnosed Sept 2015 noninvasive
1st turbt Oct 3 2015, 2nd turbt Nov 13 bladder,
Completed 6 BCG initial treatments 01/11/16 02/09/16 No Cancer!
08/09/16 Cyto shows red spots on bladder, TURBT prostate scheduled
09/12/16 Cancer is back Ta prostate ,T1 high grade bladder papillary uthelial.
Cancer has invaded muscle getting RC.
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