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Surgery questions

2 years 8 months ago #52331 by DannieC
Thank you for the info. I'm trying to get as much as possible to make the best educated decision I can.

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2 years 8 months ago - 2 years 8 months ago #52330 by Alan
Welcome Dannie and glad you found the forum. Sara Anne has given some good comments and while I have not had a RC, there should be some reading and responding once they see your thread. I am adding a quick discussion on diffrent diversions from the Cleveland Clinic that is a good start: http://my.clevelandclinic.org/health/treatments_and_procedures/hic_Urinary_Reconstruction_and_Diversion

Keep checking and posting.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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2 years 8 months ago #52329 by sara.anne
Well, you are facing some important decisions. I know that the guys will be chiming in with their opinions. I am female and have not had an RC, but have been moderating here for a long time, so can send on some second hand information!
:laugh:

As you probably know, this is MAJOR surgery, and there is quite a long recovery and training time. At your age, and in your physical condition, my gut feeling is that you should seriously consider the neo. The most important thing is that you have a surgeon who is VERY EXPERIENCED in this procedure....meaning someone who does several of these a week, not several a year. This is critical to your success.

Sometimes, when the surgeon is actually into the operation, it becomes apparent that the pre-selected option will not work, and the default is the ileal condiut.

There are many men who have been on the Forum who have a neobladder and do such things as scuba diving and driving race cars! They report that a really "tough" attitude helps!

Good luck to you

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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2 years 8 months ago #52327 by DannieC
I was diagnosed in 2008. I have had tumors removed and gone through three kinds of chemo. Now the cancer is in my prostate as well. I have two choices neobladder or osteomy bag. Looking for some.answers on what the best choice is for me. I'm 53 I was diagnosed at 45. I'm a tree trimmer, I've been climbing for 34 years. I am very active. Looking for men my age that have an active lifestyle like mine to get there thoughts on the two proceedures. Do you feel you made the right choice with the one you chose. Thanks Dan C.

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