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Neobladder problem

3 years 8 months ago #50590 by Judy
My husband had the same thing happen to him: neobladder surgery, blocked ureters, then nephrostomy tubes draining the kidneys directly into external bags. Then a second neobladder surgery, but the same thing happened. We were told that chemo increases the risk of scar tissue. After each surgery the stents remained for a couple of months, were removed and then blockage.

He did not survive all of this, but in hindsight, we both wished he had just opted for the ostomy bag in the first place.

I wish you good decisions and healing...

Judy
The following user(s) said Thank You: busy house

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3 years 8 months ago #50589 by Cynthia
Welcome to our community. About five years ago I had a similar problem. I have an Indiana Pouch and it is similar to the Neo except for the way it is drained. My ureter was blacked with scar tissue they could not place a stint due to the scar tissue. The where able to do surgery to remove the blockage and place a stent that was removed about six weeks later. It has remained open and I have done fine but we do keep a close eye on my kidney function for early signs of trouble. I hope it works out as well for you please keep us updated.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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3 years 8 months ago #50588 by mwedge22
Had a radical cystectomy 10/14 of bladder and prostate. No cancer in bones lymph nodes. Followed with 3 mos of chemo. Now 15 mos later discovered scar tissue in connectors between neoblader and ureter. Radiologist inserted 2 tubes to drain kidneys as creatinine levels were high. Suppose to have tubes for 2 weeks then stents for 6-8 weeks. Given 50% chance of succeeding. Otherwise reversion surgery. Please comment new to forum.

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