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cancer

5 years 2 weeks ago #47134 by anke
it has been 3 weeks yesterday since my operation went to the stoma nurse to have the drainage removed i am getting used to my bag {not really] i still have no energy what can i do to pick myself up
next week is the big appointment to see if i need chemo or what ever is it normal to get chemo after removal of bladder there are so many things i like to know no one i know has this so i am glad i found you all thank you
bella Anke

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5 years 3 weeks ago #47091 by Knut
Hi Anke and welcome home.

It will take some time before you recover fully. Remember this is a big surgery and some people compare it with a hearttransplant.

Have the hospital made any plans for followups and training?

I remember it took me a while before the skin on my stommack got used to the stoma and I used a rubberbelt to hold it there.

If you have pain you should talk with your URO or your personal doctor about it.

Just relax now and think that you will feel better soon.

Sincerely,
Knut

Diagnozed first time April 1th 2004.
Muscle invasive, T3A.
Radical Cystectomy June 29th 2004.
Illeal conduit. Bag on my stommack.

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5 years 3 weeks ago #47084 by anke
it has been 2 weeks and 2 days since i had my bladder removed was 6 days in hospital and now at home i am so very tired no energy food won't go down constepation is some thing els how long dos it take to feel a little better???
regards
bella Anke

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5 years 4 weeks ago #47055 by sara.anne
I moved your post into this category where more people who might have answers for you will see it.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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5 years 4 weeks ago #47054 by anke
Hi all
i had to change my info as my iPad had the bomb
thank you for all your support before my operation
had bladder removed 9th of september hospital to 16th september
now at home and trying to come to grips with bags pain and so on
do you have the bag inside your undies ore where
how long before i get a grip on the hole thing
have to see the surgeon early october he is talking possible chemo /radiation
why if the bladder is removed as you see i have no knowledge and only had the diagnose
about 5/6 weeks ego well all anther things are going well i think i am just so very tiered
love Anke Bella

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