10 years ago-having a Radical Cystectomy

9 years 7 months ago #46944 by Bella
Replied by Bella on topic 10 years ago-having a Radical Cystectomy
Sorry I am confused I only sign my German letters with Anke
So Anke and Bella are the same
Bella

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9 years 7 months ago #46943 by Bella
Replied by Bella on topic 10 years ago-having a Radical Cystectomy
Only 8 days to go and I have no information what to expect
How long is the operation how do I feel after
What do I experience in hospital
How hard is it to look after a stoma
What happens when I go home
I have agressive cancer
After the removal of the bladder I know they are doing more tests
To see if it has spred to other part of the body
Ct scan looks not bad but the cancer is in the bladder muscle
Anke

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9 years 7 months ago #46942 by Bella
Replied by Bella on topic 10 years ago-having a Radical Cystectomy
Thank you for answering my post I don't know how to get to all the messages
I am getting a stoma bag it frightens my I feel like I am the bag lady
Love
Bella

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9 years 7 months ago #46941 by Bella
Replied by Bella on topic 10 years ago-having a Radical Cystectomy
Thank you for your for your answer I am having problems working my way through this forum but I will learn
I am a 71 year old female from Australia what can I expect I can't get my head set that I have to have a stoma if I don't get treatment the doc gives me one year I thought I might take that option but my children and grandchildren still need me my world has turned as I found all this out only 4 weeks ago
Thank you for listening
Love
Bella

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9 years 7 months ago #46938 by Cynthia
Replied by Cynthia on topic 10 years ago-having a Radical Cystectomy
Bella, I moved your post as it deserved its own thread. As I do not know what type of diversion you are going to have I can not address that side of things. The pain side of things is for the most part well handled according to most who have been there. You will be on the hospital until your bowels start working again the amount of time varies from person to person, in my case it was seven days. The best thing you can do for yourself is to walk as much as you can as it will help a great deal. Walking will be slow at first but try to do a little more everyday. When you get home you will need someone to help for a few weeks. I am sure you have more questions please just post them and I am sure others will chime in. Know that this is hard but the message we would send you is that it is doable. Good luck and keep us updated we are here for you.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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9 years 7 months ago #46937 by GKLINE
Replied by GKLINE on topic 10 years ago-having a Radical Cystectomy
Bella
Where are you having this done?
How experienced is your Dr.?
What kind of diversion are you getting?
Are you male or female?
How do you feel?

You can look around at this site and see plenty of stories about survival of bladder cancer. I am one of those.

I wish you the very best.

And...... welcome to the site. We hope you get the best of care and go on to live a normal life like us

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]
The following user(s) said Thank You: Bella

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