Tried to post yesterday but got interrupted at work , and no internet later at home grrr- just to wish you well, but pleased to read your last post re no mets, and hope they get to the cause of the problems soon and can get them sorted out The no sleep thing is a real bummer- and it makes all your problems feel ten times worse, so hope you can get some rest this weekend, wishing you all the best,
Hi guys we are on the MA Turnpike headed home. Some good news all the scans did not show anything to suggest mets or a new cancer. More tests will come back Friday we hope they tell us what direction to go in. I am having neurological symptoms and incredible weakness pain when walking or getting up and down. Showing some neuropathy in left hand and foot. Had not slept two hours a night in over a week due to pain. They gave me 2mgs of Ativan and finally got some sleep last night. Had to use a wheel chair for long distances yesterday but am doing short distances better today. So the questions are autoimmune, vascular or cardiology? When the preliminary test are back we will have a better idea. First stop will be with a top rumitoidologists in a few weeks. But whet ever it is I feel more like handling after some sleep. Thanks for caring guys will keep you updated.
T2 g3 CIS 8/04
Chemotherapy & Radiation 10/04-12/04
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society