I am a 6 year survivor with a neo bladder. I am sorry to have you in our club. But Welcome ! I generally have been happy to have my neo. Although every alternative has it's own set of issues. With me it is night time leakage.
But I understand that women have issues with neo bladders and while it may be the only choice for me..... it may not be for you. If some of our female members chime in and tell their stories, this may help.
Also, talk over the alternatives with your Dr. They have seen more than we have. If you trust your Dr. You can make an informed choice.
Wishing you the best of luck
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.
08/08/08...RC neo bladder
New Man! [/size]
I am glad to hear your neobladder is working fairly well. May I ask you about it? I was recently diagnosed, will have my cystectomy in a couple of weeks and have to decide if I want a continent pouch with stoma OR go for the neobladder that will be connected through my urethra.
I am a 52 year old active, married woman who, until recently, hadn't even used the work "bladder" in a full sentence. Now it is all I am thinking of. I am scared of being incontinent, especially at night, and am not certain how I will handle getting a catheter up my urethra if I need to do that.
Are you will to share your experience with your neobladder so I can learn what type of things to expect (realizing it may be different for each person) as this may assist me in making what seems to be a very important decision for myself.