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Here we go again?

11 years 2 months ago #44034 by upnorth
Replied by upnorth on topic Here we go again?
Mike,

I cant express how scared I am for you and your family. You are, and always will be a VERY IMPORTANT PERSON to us. You have been the voice of reason when we start to get out of line with our fears.

We need, and want you with us for as long as God will allow it.

I for one would like to thank you for always braking down the medical jargon and explaining it in lay-mans terms, so the rest of us can understand what is going on. Your hard work is much appreciated.

You do what ever it takes, for as long as it takes you.

Your friend always;

Mark
Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)
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11 years 2 months ago #44033 by Nix
Replied by Nix on topic Here we go again?
Mike, I will keep fingers,toes and eyes crossed until we hear something official from all the tests and results.
Hopefully when they get to the bottom of this, it won't be a reoccurrence.
No matter what, all your friends here are ready to be here for you.

Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
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11 years 2 months ago #44031 by DougG
Replied by DougG on topic Here we go again?
Mike,

Prayers are with you. Glad you will be home for Liz's birthday.

Anita
Anita
Forum Moderator
Caregiver
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11 years 2 months ago #44030 by Cynthia
Replied by Cynthia on topic Here we go again?
I have had blood in my urine since my Radical Cystectomy and it is very scary. Once I learn t that I and aspirin products no longer mix it has gotten better. Having to cath I have found that the cathing in its self can cause bleeding, if you scrap the wall. I have also had enlarged lymph nodes. Every time it has been a tempest in a tea pot so to speak. Cytology and I have a long history of false positives and false negative and on and on. The reason I am telling you all this is because sometimes even when it looks bad it is a tempest in a tea pot and that is what I am wishing for you. I have always said the caner would never get me it would be a heart attack from all the scares brought on by test results.

Know I have my fingers crossed for you and will be thinking of you. We are here and you can be cranky or not yourself of anything you need to be we are just happy to have you.

Keep us updated!
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society
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11 years 2 months ago #44028 by CatherineH
Replied by CatherineH on topic Here we go again?
Glad you're heading home. Any difficulty is made better by being with the people who love us the most... and vice versa.

Happy Birthday to Liz...
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
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11 years 2 months ago #44027 by mmc
Replied by mmc on topic Here we go again?
Thanks Catherine and Sara Anne. I decided to go home today after all. Tomorrow is Liz's birthday so I'll be home for that!

Took a taxi over to Hartford Hospital to do another urine culture and I'll be heading out to the airport shortly. Just would rather be home.

I will keep everyone in the loop.

It's pretty cool you can just go to a lab anywhere in the country while you travel and get tests done and faxed to your home doctors. :)

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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