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Here we go again?

11 years 2 months ago #44087 by mmc
Replied by mmc on topic Here we go again?
PET scan tomorrow at 11:15 mountain time. This is great news. Thought it was going to take a week or more to get scheduled but the scheduler got me in tomorrow and got my preauthorization done and called me back to confirm. Great people that I am working with! Hoping to know the full extent of what we are dealing with so we can start treating this.

Told my doc that things are taking a long time in "cancer patient" years! They are WAY longer than dog years. One day feels like a month! Only so long I can be on the sideline doing jumping jacks. Time to get in the game!!!

Mike

I'm drawing flow charts in my head about what to do. If lymph nodes then x; else y. Right kidney = null (remove)...
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 2 months ago #44086 by CatherineH
Replied by CatherineH on topic Here we go again?
Hey Mike... So sorry to hear this but YOU and your doctor have the right idea to be aggressive with treatment.

Now I've got that Jeopardy song stuck in my head! B)
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN
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11 years 2 months ago #44085 by upnorth
Replied by upnorth on topic Here we go again?
Mike,

Heres a buddy to help with the waitng.


Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)
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11 years 2 months ago #44084 by Nix
Replied by Nix on topic Here we go again?
Right here with you Mike, Sara Anne is right, WE will get thru this and be here to cheer you on!

Hugs,
Nancy
Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07
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11 years 2 months ago #44083 by sara.anne
Replied by sara.anne on topic Here we go again?
Well, not exactly what we wanted to hear. But you are still in full control and "we all" will get through this!!!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
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11 years 2 months ago #44082 by mmc
Replied by mmc on topic Here we go again?
Doc called. He walked me through the procedure he did Monday. The kidney was suspicious but he wasn't sure if it was from the telescope that went up first or the wire. So he did some washes and they came back high grade urothelial cancer. Now he is more concerned about the lymph nodes (not in an easy area to biopsy) that showed up on the CT scan before. We thought those were swollen due to the infection I had but that may not be the case now.

So...now we need a PET scan. Hurry up and wait. He was going to call to set that up as soon as he got off the phone with me. He said it typically takes a week to get set up. They have to order to radioactive material...half-life...etc.

I will call tomorrow to try to schedule asap. SO...as I already "knew" it is back. I still don't know how bad and where for sure. I reiterated to my doc that I want to be extremely aggressive with treatment and he agrees. We just need to know what we're dealing with so we can start.

I will keep you all up to date.

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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