Neobladder Surgeons in Denver or San Francisco

11 years 8 months ago #42820 by Janet T
Take up all the room you want!

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11 years 8 months ago #42819 by mmc
Janet

Also keep in mind that he is worried about how he says things what things he says to you too. If the two of you talk about that, it might help both of you.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 8 months ago #42818 by sara.anne
Replied by sara.anne on topic Neobladder Surgeons in Denver or San Francisco
Janet, you probably have about 100 people going to that appointment with you tomorrow!! Hope we don't take up too much room in the waiting room!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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11 years 8 months ago #42811 by Janet T
Again, thank you.

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11 years 8 months ago - 11 years 8 months ago #42809 by mmc
We know why you are upset even though you don't have cancer. It is because you are afraid of losing him and worried about everything that comes along with this whole mess.

I was the one with cancer and I knew that it was very tough on my wife. She would be the one to be on her own if I died. Instead I just didn't die. Got my bladder out instead. Way better choice if I do say so myself.

Your husband isn't about to die either. Life without a bladder is just fine and odds are that he will be just fine. It would be quite abnormal though to not worry about and about yourself. So, why feel bad about something completely normal?

Now that you know it is normal, no reason to feel guilty about it.

Keep us in the loop. It is ok to share that feeling with your husband. Telling him exactly what you said here would be greater. You actually used the perfect words to describe it. This is a team sport!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 8 months ago #42804 by Janet T
Hi Anita and Doug,

Thank you for your support. I am finding being the support person is very hard. I have times of extreme anxiety or melancholy, but then I think "Why am I so upset? I am not the person with cancer!". Having people here to talk to will help me a great deal as well as my husband.

Janet

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