Forum

× click new topic to begin your post

Neobladder Surgeons in Denver or San Francisco

7 years 2 months ago #42820 by Janet T
Take up all the room you want!

Please Log in or Create an account to join the conversation.

7 years 2 months ago #42819 by mmc
Janet

Also keep in mind that he is worried about how he says things what things he says to you too. If the two of you talk about that, it might help both of you.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

7 years 2 months ago #42818 by sara.anne
Janet, you probably have about 100 people going to that appointment with you tomorrow!! Hope we don't take up too much room in the waiting room!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

7 years 2 months ago #42811 by Janet T
Again, thank you.

Please Log in or Create an account to join the conversation.

7 years 2 months ago - 7 years 2 months ago #42809 by mmc
We know why you are upset even though you don't have cancer. It is because you are afraid of losing him and worried about everything that comes along with this whole mess.

I was the one with cancer and I knew that it was very tough on my wife. She would be the one to be on her own if I died. Instead I just didn't die. Got my bladder out instead. Way better choice if I do say so myself.

Your husband isn't about to die either. Life without a bladder is just fine and odds are that he will be just fine. It would be quite abnormal though to not worry about and about yourself. So, why feel bad about something completely normal?

Now that you know it is normal, no reason to feel guilty about it.

Keep us in the loop. It is ok to share that feeling with your husband. Telling him exactly what you said here would be greater. You actually used the perfect words to describe it. This is a team sport!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

7 years 2 months ago #42804 by Janet T
Hi Anita and Doug,

Thank you for your support. I am finding being the support person is very hard. I have times of extreme anxiety or melancholy, but then I think "Why am I so upset? I am not the person with cancer!". Having people here to talk to will help me a great deal as well as my husband.

Janet

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add Files.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 0 Users and 1638 Guests 

Statistics

Today Total Opened: 0 Today Total Answered: 0 Latest User: Vls57
Yesterday Total Opened: 0 Yesterday Total Answered: 0
Total Posts: 52796 Total Subjects: 6870 Total Users: 8449
Powered by Kunena Forum