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Good Followup but Failing Pouch Adhesion

7 years 11 months ago - 7 years 11 months ago #42370 by RBH
Thanks, Mike, but I've got and wear a pouch support belt. What I'm looking for info on is different, a hernia support belt, maybe like this: http://ostomycareandsupply.com/whatsnew01.html (down toward the bottom of the page).

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7 years 11 months ago #42367 by motomike
Belt- I wouldn’t be without mine. It was a little over a year before my stoma nurse & I tried the Hollister 8488 bag which have the attach points on either side for the belt. So my bag requires a barrier ring such as the Elkin and a belt 7299 or 7300. I like to limit my wear time to 4 or 5 days. I have been leak free for over a year. I think the belt helps hold my bag against my body when I go to bed. My body changes shape in bed.

I surfed pictures of your bag and mine but neither shows the hookup points for belts. I’m guessing they are pretty similar.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

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7 years 11 months ago #42366 by RBH
Well shoot. Managed to blow away a post. I'll try again, this time shorter.

This afternoon I was diagnosed with a peristomal hernia, which is apparently causing the leakage problem. The urologist made an appointment for a consultation with a surgeon, but I'm also researching non-surgical treatments, like hernia support belts. Does anyone have any experience with them?

I'm trying the Eakins seals, as Barbara suggested, and it seems to help a bit. I finally got back online today after nearly four days of power outage at 90+ degrees out here in the boondocks, and found a couple of demo videos about the seals so mebbe I can put it on right the next time! :) If I can get back up to 3 days per pouch (as compared with my previous 6-7 days) I'll be a happy man.

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7 years 11 months ago #42349 by motomike
60 miles away- wow! You are not alone having your stoma nurse so far away. Mine is just a mile or 2 away. My first year or two were really important with guidance from my stoma nurse. I used phone, email (with pictures) and appointments. I was seriously intimidated by the stoma. I was afraid I would injure or damage it. It turns out it is pretty sturdy.
I often wonder about the possibility that a retired wound specialists nurse might be just a few blocks away and connection just doesn’t happen. I wonder about Craigs list or pennysaver to find someone closer…?

To be much more practical we are online here and can share our past experiences.
Several have expressed how great the Eakin seals are for them. I might try some.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

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7 years 11 months ago - 7 years 11 months ago #42282 by RBH
Brief update: I called ConvaTec and they're sending me free samples of several sorts of Eakins seals along with some other stuff, so I'll be able to try that out.

One suggestion was that I may have a peristomal hernia, so I'm making an appointment to have that checked.

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7 years 11 months ago - 7 years 11 months ago #42243 by RBH
Mike, Barbara,

Many thanks for the responses. I'd not considered seals--I didn't even know they exist! (My stoma nurse is 60 miles away, and I met her for only 30 minutes a few days after my surgery). There's no one local.

I'll try both Mike's vinegar and water cleaning idea and Barbara's seal suggestion.

Again, many thanks!
RBH

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