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Just got bad news.

7 years 5 months ago #41939 by mmc
John,

Sorry to hear the news. It sucks!

Good luck on the trials. Sounds like you have a great attitude. I wish you the very best!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 5 months ago #41935 by DougG
John,

My prayers and hopes are with you also. This drug sounds promising. Thank you for participating in the clinical trial.

Best wishes,
Anita

Anita
Forum Moderator
Caregiver

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7 years 5 months ago #41934 by john14108
Mark, I'm going to be 72 in July so I figured that with the time I have left I might be able to help in the research of this disease. Who knows, maybe I'll be in the right side of the blind study and it'll be the break thru drug. I know that the drug has proved to be a good treatment for other types of cancer.
It just hasn't received FDA approval for treating bladder cancer.

John

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7 years 5 months ago #41932 by upnorth
John,

I don't know what to say. I really admire you for allowing them to do the testing on you. My Dad did that 25 years ago also.

No he didn't make it but I know in my heart, that the information found from those test results are the reason I and many others on this site are still alive to day.

May God be with you, and guide your treatments. I will pray for you also.

Thank you for your commitment to helping find better treatments for this diseases.

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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7 years 5 months ago - 7 years 5 months ago #41930 by GKLINE
John. I am so sorry to hear this.
I too, thought the Radical Cystectomy was the end of it. And NOW this. I wish I could help you with this, but I can only wish you the best and say prayers for you every day.
I hope the aggressive means they are employing can reverse the cancer . This damn disease is one that can never be taken for granted.

Wishing you the Best
George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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7 years 5 months ago #41929 by john14108
I had my CT scan yesterday and got the results today. I have 2 spots on my liver and one in the lymph nodes at the back of my abdomen. The cancer is very aggressive, T-4. They are going to start me on chemo, Gemcitabine and Cisplatin next week. I also
agreed tosign up for a clinical trial where they add Bevacizumab to the mix. The trial is a double blind trial so I won't know for sure if I'll get the 3rd drug. My oncologist said that the median survival rate is 13 months for my type of cancer at this stage. Do we have any long term survivors here that can offer me a better outlook? I thought the worst was over after my radical cystectomy but I guess not.

John

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