Ben,
Not confused at all. It all makes sense to me. Seems to me like overall it sucks!
I really hope it all works out.
One thought is that because it was T3, then the rest of the bladder is HIGHLY likely to have a recurrence. If they got the only two lymph nodes that had cancer spread then wouldn't removing the source improve the odds?
If you haven't asked them about the CT/PET (the PET part being the operative word) then you may want to discuss it. They do head to toe and put radioactive stuff in the veins. If you do it and you get the CD of the scan don't freak out when your kidneys, brain, and bladder light up like New Your City at night. It doesn't mean anything. Freaked me out but that's what I get for looking at scans without waiting for the doctor to do the report.
Sounds like you are in good hands so that is good. It's just my spidey sense getting tingly about "wait and see"....
Good luck with everything!
Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...