hernia after neo bladder surgery

12 years 4 months ago #40353 by loubrook
Replied by loubrook on topic hernia after neo bladder surgery
Well ,my ct scan was done nov.15.No news yet.no news good news...
I wish. Man, that waiting is killing me.I find this is the worst part,after you know what is going on you deal with it,but meanwhile your head is spinning all the time.

feels good to complain about it.I will sleep better tonight.

Thanks for listening.

Loulou

metastatic urothelial carcinoma,neobladder surgery oct.2010

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12 years 5 months ago #40153 by loubrook
Replied by loubrook on topic hernia after neo bladder surgery
thanks Mike

metastatic urothelial carcinoma,neobladder surgery oct.2010

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12 years 5 months ago #40152 by loubrook
Replied by loubrook on topic hernia after neo bladder surgery
Thank you Mike.
will wait patiently for results.

Loulou

metastatic urothelial carcinoma,neobladder surgery oct.2010

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12 years 5 months ago #40150 by mmc
Replied by mmc on topic hernia after neo bladder surgery
Bonne chance!

Your English is better than my French. :). We can make understand it.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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12 years 5 months ago #40149 by loubrook
Replied by loubrook on topic hernia after neo bladder surgery
Hi,went to Toronto hospital for the 3 months follow-up.Scan done, meet with surgeon for my hernia,surgery will be in 3 months,wait wait.
what can you do,have to wait for my turn.Then,see my doctor ,talk about my infections and antibiotics,he said I should irrigate my neo bladder but nobody showed me how to do this yet,they did show me how to catheter but not irrigate,I did it when I had my surgery but not since.its not the same as i was doing.Don't know why they did not showed me the same time as catheter.I could not get that appointment until Friday so I found somebody else close to home to teach me.And my scan was the next day so I did not see my doctor after to get the results.
get me so anxious,you want to know but scarred like hell to hear the results.
and for the hernia,there is absolutly no garanteed that my neo will work properly after.But what ever, the important is that the scan shows nothing else..To repair the hernia the doctor will use a biologic mesh instead of a synthetic which is a very good new because it cost 5,000 dollars but I wont have to pay for this, when he surgeon think it is better for you,he said he prefered this one for my case because of the neo bladder.he said that the syntetic could damaged the neo.
Came back home last night,its a 5 hrs drive,went good ,no snow.....yet tomorrow will get that white stuff.
so it was a week of nerve wreck,still wait for results but hoping for the best,
thanks for your support and I will get better with my english

salutations to every one,and will get back to you with the results.

loulou

metastatic urothelial carcinoma,neobladder surgery oct.2010

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12 years 5 months ago #40093 by mmc
Replied by mmc on topic hernia after neo bladder surgery
loulou,

Sorry about the problem. It sure sounds like your doctor is likely correct.

I had hernias (a lot of them) along my incision. I needed a couple of surgeries to repair them. They did groups at a time.
I also lost my pushing capability during all of that and wasn't draining fully. Not sure if it was related to the hernias though.

It does kind of make sense though.

I had a later complication that my neo got way overstretched when I was in the hospital for one of the hernia surgeries. They had a foley catheter in and it was clogged by the mucous of my neo. When I realized that I didn't have any output in the catheter bag (originally I thought they must have emptied it but I checked with the nurses and found out they didn't) I catheterized myself. I got over a 1000 cc's.

I have to cath every time I go now. I hope the same thing doesn't happen to you. If they figure out where the hernia is that think is responsible for your problem, let me know. It might be worth me following up with my doctor to see about that too.

Best of luck to you!
Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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