Douglas, I am sure some of the guys will chime in about their quality of life with a neobladder. I am a seven year survivor with an Indiana pouch and I have to tell you that life is pretty good from where I stand. This whole thing at first has a nightmare quality to it that if for sure. But with time it becomes our new normal and life goes on. You are in the thick of it at the moment and all of us that have been there understand the stress you are under. I hope you find a home here in our community and the day comes that you are writing to some guy that is where you are today telling them to take a big breath and take it one step at a time to get to the other side. Keep us informed.
Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society