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Looking for peace of mind....Mom's diagnosis

12 years 7 months ago #4016 by Mike
Jeffry I am sorry to hear about your Mom and here I got a great big hug for your Mom. My tumor was also large about 2-3 inches but I did not see it or really care to. Now some folks have had large tumors that turned out to be just superficial. But honestly Jeffry when they are large unfortunately they usually have invaded the muscle. Mine had grown at the top of the bladder and also went into the ureter on my left side. They had to put a stent in to open up my ureter because my left kidney was not functioning. Now there's a plus at least you Mom did not have this problem. Also you did not mention how old your Mom is because she can get the ostomy bag or consider the Indiana pouch also. This is where they leave a stoma and one has to cath themself you can get some info from this link http://blcwebcafe.org/pouch.asp. When my biopsy came back it was Stage2 G3 but it was contained in the bladder and did not spread to any lmphnodes or any other organs. Because of this I am getting the chemo first and then the surgery and my Dr. assurred me I am a good candidate for the neobladder. You can view my treatment plan under this topic. As far as any supplements I always ask my Dr. first before I take anything other then what they tell me what to take. So hang in there all is not lost here it just may be a longer road to walk such as mine. Also that link I gave you please read there is a ton of valuable information there that may answer some other questions you may have or you Mom. Best Wishes, Joe

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12 years 7 months ago #4014 by Rosemary
Jeffry,

I neglected to point out the "Alternative Therapy/Chemoprevention" section of this forum. It is located under the forum topics "What Else".

I hope you will keep us updated on how your Mother is getting along.

Very best regards,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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12 years 7 months ago #3858 by jeffry
Thanks Ladies!

I guess he mentioned the bladder removal because he didnt get all of the tumor out? If he did get everything I would question why we have to remove it.

I really want to teach my Mom to use the computer but she thinks she is too old to learn!!! I have read her everything yo guys have said and others on the site. Everyone should be told about this site when they are diagnosed so they can read up and not be left in limbo. It should be a MUST from doctors.

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12 years 7 months ago #3849 by Rosemary
Jeff,

Patricia is right.  It generally takes about 3 days to hear from a pathology.  At least this is true in my neck of the woods.

This is why I'm a little confused as to why the doctors are already discussing bladder removal.  Actually, come to think of it, my own doctor discussed this possibility of bladder removal with my family and friends before the stage and grade was determined in my pathology report.  However, it is one year later, and I still have a bladder intact and so far, my urine seems to be very clear.

We have discussed many homeopathic "remedies" on this forum.  I cannot vouch for anything.  I personally use them for the same reason that many here do.  The reason for this is because it is the only proactive strategy that I know of, beyond the BCG regimen prescribed by the Doctors.  There is however, validated research prescribing the use of specific vitamins and aged garlic along wilth Bladder Sparing therapy.  (depending on stage and grade and prognosis with path report)

I am hoping for the best possible outcome from your Mother's pathology report.


With regards,
Rosemary



Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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12 years 7 months ago #3847 by Patricia
it took 3 days for my results to come back......but i'm sure it has to do with how backed up they are in the pathology dept.
Rosemary is right..it depends on the stage and grade of the tumor and if it has invaded the muscle which will determine her treatment. I have no problem with Homeopathic meds...but you have to be careful...some things will interact with meds the doctor may give her.....and of course, none of it is regulated by the FDA...not that they're doing such a bang up job these days...........Pat

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12 years 7 months ago #3845 by jeffry
:)
Thank you Rosemary for moving my posting, I really appreciate your help.

No, I dont think the doctor knows yet, he said it would be about a week until he knows. Does this sound right? or should they know sooner?

What Homeopathic items do you take?

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