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INCONTINENCE

8 years 8 months ago #36045 by BillM
Hi Brett,

When I asked my doctor about time lines for a lot of this, she said healing and learing differs from person to person. The biggest part of regaining continence is kegel exercises and a schedule to train your new bladder. This is a learned process, not healing. If your cath was pulled in the last few days, you’re just getting started. It really will get better.

Be careful with your liquid intake before bed time and find ways to get rest. With the training schedule it can lead to sleep depravation pretty fast and if you get too run down, you’ll never wake up in time to make it to the bathroom. If the kegels are not working after a while, you might talk to you doctor about biofeedback therapy.

I had my surgery Nov 2 2010, and towards the end of Dec turned 49. The foley’s catheter came out on Nov 18th . The out of control sprinkler at first seems to be pretty normal for everyone. The first two weeks were miserable, just blinking seemed to start the voiding… I’m just getting to where I can count a few dry days and nights in a row, but I’ll continue to wear a pad or diaper for a while. Murphy’s Law.

Regaining continence is just one of the steps in the big picture for beating this cancer. Once you get a little control, things will start to fall into place and eventually normalcy will return.

Bill

5.24.10 Final staging T2G3 7.28.10 Started Gemcitabine, Cisplatin neoadjunctive chemotherapy
11.2.10 RC with NEO 11.18.11 First year CT shows possible liver tumor
12.8.11 Confirmation of TCC BC mets to the liver 6.27.12 Final round of Dose Dense MVAC
7.26.12 Final scans showed no tumor or no...

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8 years 8 months ago #36044 by Brett
Mike,

Thanks again, you and the forum have been an invaluable help.

Kind Regards,

Brett

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8 years 8 months ago #36035 by mmc
2-4 weeks. Progressively better each day though.
Glad you found us here Brett! We also got a LOT from this site when we were going through it!
That's why I keep coming back. It's a way to give back!

Soon, you will be advising and telling your story which, in turn, will help others.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 8 months ago #36029 by Brett
Lee, Mike,

You are right, i'll hang in there.

Can you give me any idea of timeframe from when the catheter comes out to when the muscle between the bladder and urethra returns some sort of shape to at least stop the continuous drip, drip.

I start work this Thursday and have the Depend pants, with a pad inside them ready to go. Not fashionable but that's the last thing on my mind at the moment.

It makes me feel a whole lot better speaking to other people who have gone through the exact same thing.

Kind Regards,

Brett

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8 years 8 months ago #36023 by LeeH
As they were taking out my catheter the Uro said there was a possibility I would have difficulty urinating. When it came out a stream the size and power of Old Faithful followed.

I remarked to the Dr. "That doesn't seem to be an issue"

Hang in there :)

Lee

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8 years 8 months ago #36002 by mmc
Brett,

We understand. It can be (pretty much just is) pretty frustrating for a while. You finally get over the trauma of the major surgery and then the catheter finally comes out and the urine just kind of leaks out.

It does get better though...step by step, day by day.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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