CIS

Fallon,

I'm fumbling a little too  I haven't been moderator for very long, but I moved your thread to the Cystectomy section of the forum.  Not that you did anything wrong, but you may get more response from that area. Also, you can always use your "modify" button, if you feel you want to change anything in your post.  

I'm not sure, but I am thinking that you may be given a general anesthesia for a more prolonged surgery such as a cystectomy.  Has your doctor told you that you will have a spinal?

I am wishing you the best.  

With warm regards,
Rosemary

Please forgive me jmeba I wrote your name wrong at the top also think I might have stsrted this thread in the wrong place sorry.

fallon

Thank you Nanaca sounds like you are doing well and have a very positive artttude. I try to be positive and stay strong for my family but at times I do get a little scared at the thought of the surgary.
Reading through your messages helped me gave me a little more insight.
I am a little afraid of the spinal as I have had about 10 with no problems but is was after the last one my legs did not wake up for 5 hours should have been awake afer 20 min. thats when the blood clots developed.
I also had a knee replacement while inbetween treatments but still worry about being able to handle the surgary.
I do hope you legs are feeling better and they find an answer for you.

My doctor is an hour away so still a good drive but the thought of having to fly somewhere for the Indiana pouch is what stops me going that way.
My heart doctor said he did not think I could make it through the Uro bladder surgary because of my problems with the blood clots.
Thank you for all your kind words
Regards fallon

Thank you Rosemary for your kind words I feel like I have been fumbling my way through all this since I was diagnoised hopeing to save my bladder I am so grateful for this site is is so helpfull.
Fallon

Fallon,
You sound like you can handle just about anything and I wish you the best, whichever, path you choose.
If you go to the cystectomy section and read two threads, one Recovery Time, started by Nanaca and one Update on Jmema from daughter Gina, started by me Jmema you will get a lot of good information and opinions on both diversions.
I had the ileal conduit and am getting used to the bag and was very active before my surgery (caregiver for a 17 month old granddaughter). It has been a little over 3 months and I am doing well except for some lympedema and neuropathy. They are being treated and getting better. I manage to be active in spite of it. Even though I chose the bag I had to go to a hospital that was about 1 1/2 hrs. from home to have the particular surgeon I felt confident with.
Blessings.....Jean

Dear Fallon,

My, but you have certainly fought the good fight!  I don't know if I could have hung in there for so long.
Not only have you had to suffer the tortures of constantly having your bladder beat up, but you've also had to live with a constantly niggling worry of whether the treatments are working.

I can only imagine that you are going to feel much, much better when this surgery is over and you are all healed up.  

I don't know enough about the outside bag to answer your question, but hopefully someone will address this for you soon.

Best regards,
Rosemary