CIS

17 years 1 month ago #3625 by Patricia
Replied by Patricia on topic CIS
Wendy..its not just younger people being offered the neo-bladders or Indiana Pouches..it has a lot to do with expertise and the area you live....all urologists are not created equal. I live in a large city and there is actually noone who can do an Indiana Pouch...hard to believe. And it appears to be gender specific also....men they offer a neo-bladder...women a bag especially if you're like really old like 60!!! And us old foggies are in cyberspace and on this site...take a poll .. you'll be surprised.
Funny how if you're a man in your 80's surgeons don't even blink before they do by-pass surgery.........but a woman..hmmmm..they haven't figured out our tiny little arteries yet.........and pouches and neo-bladders god forbid on a 60 or 70 yr old female???....much easier to do a bag isn't it?
There are really only a few really dynamic hospitals that routinely do this surgery and have great compassion for the women involved and I highly recommend people seek them out. So what if you have to leave home for a few weeks....its your life. I'd be six feet under right now if i'd stayed here and had the partial bladderectomy (honestly my uro called it that) that he wanted to do. Of course he'd never done one before! Hello!
Glad i'm not completely senile at 60!................

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17 years 1 month ago #3622 by joanie
Replied by joanie on topic CIS
Thanks for the information Martha makes me feel better knowing I wont have too many problems with clothing.I will remember the panties you mention. I make a lot of my own pants as I am only 4.11 have a hard time finding things my size even in the juniors I have to cut so much off.
pat had given me some advise in making sure I have a say so in where my stoma goes. Stay well
fallon

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17 years 1 month ago #3599 by Martha
Replied by Martha on topic CIS
My stoma is about 2 1/2" from my navel on the right side due to the fact that I only have the right kidney. Left one was taken out in 1983 due to a grapefruit sized, non-malignant tumor. As far as swimsuits are concerned, I have heard that the tankinis with a little skirt work well and suggestions are to stay away from solid colors and pick prints. My bag can be folded down a little to be hidden by my waistband. I, too, am a shorts, t-shirt type of person. Good luck and stay in touch.
Martha

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17 years 1 month ago #3598 by joanie
Replied by joanie on topic CIS
Thank you Tim for your reply. Do you mean the man had the bag on the outside or the Indana pouch?
Its just scary and not knowing which procedure to have.

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17 years 1 month ago #3597 by joanie
Replied by joanie on topic CIS
Thank makes me feel better Martha not having a problem with clothes. I am a shorts and T shirt gal in the summer or skirt.In the short winters we have I wear pants dont often wear jeans so that wont be a problem.
This is is a urinery tract infection think it was from the cysto they did last week where they went in my bladder to look around and try to stretch it but everytime he tried to fill it up blood would pour out of it.
How far from your naval is your stoma and which side is it on?
Thank you for your information


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17 years 1 month ago #3596 by timb
Replied by timb on topic CIS
Ive no direct experience Fallon but a man in the same ward as me 76 years old had this surgery and we were all amazed at how well he did. He left the hospital not looking different to how he came in and pretty cheery too! Best of luck.

Tim

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