I have similar issues as your husband. I've had my bag 20 years and the past 3 years I've had recurring infections that antibiotics do not control. One year ago I had a followup surgery to help my flow improve, but now one year later I am living with constant fever symptoms. Drinking tons of water seems to be the only thing that helps. I also am open to any suggestions from anyone who might had input - thanks very much.
I have also had several uti's and kidney infections. I had renal failure on 7/1/09. I went in to have a nephy tube put in and my kidney was full of infection. I crashed on the table during the process. With the help of God and many good docs, I pulled through that. After being in the hospital for 7 days, they took the tube and fed it through my ureter to my bag. I have that changed every 4 to six weeks. I have had a couple of infections since but nothing like I was having before they put the tube in. Hope this helps you. I was also hospitalized on and off 3 times before they found out the problem. I had my RC in June of 08
pT3a no mo
Rc with Ileal Conduit on 6-09-08
2nd surgery on 6-27-09 for ureter leak
Renal failure on 7-01-09 nephy tube and then stent on 7-09-09
so far so good
You are right, the urethras were removed, due to cancer cells found 1 year post RC. As of yet, the ID specialists and urologists have not been able to come up with a viable plan to help with UTI (upper) reoccurences. The re admissions to the hospital 7x in a year,has truly subtracted from his quality of life.The article you listed was most informative.
He must have his ureters...how would the flow come down from the kidneys otherwise.....are you sure it wasn't the urethra that came out? Something is impeding the downward flow.??
Husband changes bag every 4th day; he has no ureters, removed due to cancer.There are no strictures.Sloan states this maybe colonization of bacteria, as a part and parcel of the nature of having an illeual conduit, urostomy bag.In all the years, I have been on this site, I never read about continual infections (kidney and UTI) after 2 years of an RC. Have you come across this?