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HELP!- Long Term Recovery - neo-bladder

13 years 3 months ago #3800 by cirrider
Sorry to take so long to update everyone on my dad's checkup. The Dr. was pleased with the progress. The 4 month test showed everything as it should be with the neo bladder. He prescribed physical therapy to try and get him some strength back. He also explained that if things do not work properly in the next 4 or 5 months that there is another option. This is to put in a scphinter (sp?) around the urethrea with a bulb on the outside. With that he can be continent and this is describes as a much more minor surgery than changing him over to an external bag. Anyway, if he will do his excercises, there is still hope that he will improve. He seems to be adjusting to the news and his more hopeful than before. Thanks for the input for those who have gone through this.

Rob

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13 years 4 months ago #3495 by cirrider
Thank you. I agree that he was not properly prepared. I was there for most of the discussions with the Dr. & much of the problem was my fathers insistence that he wouldn't wear a bag. So, seems like Dr. went with the only option he had, since the bladder had to come out. I think your question about measuring input vs output is a valid question that I need to ask his Dr. next week. Thanks for the help. And hopefully as I have been sharing these posts with him he will be willing to join himself. I'll keep everyone up to date after the Dr. visit next week.

Rob

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13 years 4 months ago #3488 by wendy
Has anyone explained to your father how frequently he should be trying to void on his own? Or taught him to measure input vs. output, get on a regular schedule, set an alarm at night. ALong with the kegals and getting back into shape. Regaining continence after neobladder surgery takes real committment and effort. It sounds like he did not know exactly what he was getting into, nor was he properly prepared or assisted till now, or so it sounds.

It takes a lot of work to regain continence, and can take a year or more in some cases. Keep asking questions. Use the search engine to check the contents of this board as well as the main site.

All the best,
Wendy
PS we also have a very active email group, and our archives are full of posts this topic:
see, [url]http://blcwebcafe.org/listinfo.asp

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13 years 4 months ago #3479 by cirrider
Thank you for your candid reply. I have forwarded to my dad and I'm sure it will help. Any info. from those who have gone through what is is going through can give him hope that it will continue to improve. Thanks again

Rob

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13 years 4 months ago #3475 by klynn0727
Hello, my husband had the surgury two years ago and it took him atleat 6 months to get the daytime continence under control, the exersize helped along with learning how to totally empty the neo bladder, the first few months he was in the bathroom quite frequently he had to sit instead of stand and he also held his nose and closed hiis mouth while blowing this help push the last bit of urine out. He was able to return to work as a roofer. drink beer and ride motorcycles without leakage.

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13 years 4 months ago #3464 by cirrider
Thanks for the input. We meet w/the Dr. next week for the 4 month checkup & I'm hoping to get more info. from him. What I'm trying to find out from those on this forum is personal experience that may help either know what questions to ask or what may encouarge him to keep trying. Thanks for your response.

Rob

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