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Neobladder tip of the day

8 years 11 months ago #35012 by Drew
Great Information in this forum! I'm a newbie that just found this site, and was curious about how many of us have to cath.

Received my neobladder 9/16/10 at Mayo Phoenix, and so far have not had to cath. First major followup appointment with the Urologist is 12/3.

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8 years 11 months ago #34784 by Humpy
Yes we are.............

Tip of the day II.

Get a Neobladder & enjoy life.

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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8 years 11 months ago #34779 by joel
I see a lot of you guys are about my age (50), so you know the feeling of "what? I'm too young for that". I have a lot of life I still want to experience, and, God willing, I don't intend to miss it. (kind of getting away from the "tip of the day" theme aren't we?)

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8 years 11 months ago #34778 by Humpy
I hear ya Joel. I was also excited about taking steps to save my life. What is wrong with us?!?!?!?!?!?! haha
As long as you keep the big picture (life) in mind, you will be just fine.

Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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8 years 11 months ago #34777 by mmc
That's the right attitude Joel! It will be tough but it's in investment in the rest of your life and it will be worth it.
Keep us posted! We will all be thinking of you and sending positive vibes your way on the 8th (and 9th, 10th...). Takes some effort to get up and walk when you don't feel like it. Do it anyway! :) Chew gum...

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 11 months ago #34775 by joel
Thanks for the info gentlemen. I never thought I would actually be excited about having my abdominal cavity opened up and everything messed around with, but I am looking forward to getting this behind me, recovering and getting on with life. Come on Nov. 8!

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